Can a One-Page guide spark better End-of-Life talks for dementia patients?

NCT ID NCT05596760

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests a short guide called the 'Jumpstart Guide' to help doctors have better conversations with dementia patients and their families about healthcare goals. Over 1,800 patients and their caregivers are taking part. Researchers will compare whether those whose doctors used the guide had more documented discussions about care preferences.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Jumpstart Guide (a communication-priming behavioral intervention)

What this could lead to

If successful, this could provide a practical tool to help doctors routinely discuss patients' healthcare wishes, improving care alignment and reducing distress for families.

What could go wrong

This is a behavioral study, not a drug trial, so it won't change the disease itself. Success depends on clinicians using the guide, and results may not apply outside this setting.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Chronic Disease cognitive disorder Cognitive Dysfunction Creutzfeldt Jacob disease dementia frontotemporal dementia Frontotemporal Lobar Degeneration Huntington disease Lewy body dementia Lewy Body Disease Mixed Dementias vascular dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Harborview Medical Center

    Seattle, Washington, 98104, United States

  • UW Medical Center

    Seattle, Washington, 98195, United States

  • UW Medicine Neighborhood Clinics

    Seattle, Washington, 98195, United States