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New registry aims to shed light on rare diseases

NCT ID NCT06573723

First seen Jan 16, 2026 · Last updated May 23, 2026 · Updated 20 times

Summary

This study is creating a large database to collect information about people with rare diseases like amyloidosis, sarcoidosis, and many others. Researchers will track patients' health, treatments, and outcomes over time. The goal is to better understand these conditions and improve care. About 380 participants are being enrolled at Hospital Italiano de Buenos Aires.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

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    Phone: •••-•••-•••• Email: •••••@•••••

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Locations

  • Hospital Italiano de Buenos Aires

    RECRUITING

    Buenos Aires, Buenos Aires, C1199ABB, Argentina

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Conditions

Explore the condition pages connected to this study.