New registry aims to shed light on rare diseases
NCT ID NCT06573723
First seen Jan 16, 2026 · Last updated May 08, 2026 · Updated 18 times
Summary
This study is creating a large database to collect information about people with rare diseases like amyloidosis, sarcoidosis, and many others. Researchers will track participants' health, treatments, and outcomes over time to better understand these conditions. The goal is to improve diagnosis and care for people with rare diseases.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Locations
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Hospital Italiano de Buenos Aires
RECRUITINGBuenos Aires, Buenos Aires, C1199ABB, Argentina
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Conditions
Explore the condition pages connected to this study.