VON HIPPEL LINDAU DISEASE
Clinical trials for VON HIPPEL LINDAU DISEASE explained in plain language.
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New hope for rare tumor disorder: belzutifan trial launches
Disease control Recruiting nowThis study looks at how well the drug belzutifan works for people with von Hippel-Lindau (VHL) syndrome, a genetic condition that causes tumors. About 100 participants will take belzutifan and be monitored for up to 2 years to see if their tumors shrink and how long the effects l…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE2 • Sponsor: José Claudio Casali da Rocha • Aim: Disease control
Last updated May 16, 2026 22:33 UTC
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New drug shows promise for rare cancers in phase 2 trial
Disease control Recruiting nowThis study tests a drug called belzutifan in people with advanced cancers linked to a protein called HIF-2α, including rare tumors like pheochromocytoma/paraganglioma and VHL disease. The goal is to see if the drug can shrink tumors or stop them from growing. About 322 participan…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE2 • Sponsor: Merck Sharp & Dohme LLC • Aim: Disease control
Last updated May 15, 2026 11:53 UTC
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Hope for VHL patients: Long-Term belzutifan trial tracks survival
Disease control Recruiting nowThis study is for people already taking belzutifan in another trial for advanced solid tumors or von Hippel-Lindau (VHL) disease. Belzutifan blocks a protein that helps tumors grow. The goal is to see how long people live and track any side effects over time. About 450 adults wil…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE3 • Sponsor: Merck Sharp & Dohme LLC • Aim: Disease control
Last updated May 14, 2026 12:03 UTC
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New scan could spot hidden cancers with greater precision
Diagnosis Recruiting nowThis study is testing a new imaging agent called 18F-T2, which targets a protein (CAIX) found on many solid tumors. About 200 adults with cancers like kidney, bladder, colorectal, or lung cancer will receive a PET/CT scan using this agent. The goal is to see if it can find tumors…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: NA • Sponsor: Peking University First Hospital • Aim: Diagnosis
Last updated May 15, 2026 11:54 UTC
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Hunt for hidden cancer genes: 1,500 families join landmark study
Knowledge-focused Recruiting nowThis research study aims to discover new genes that may cause cancer to run in families. Researchers will collect blood samples and health information from 1,500 people in families where multiple members have had childhood cancers. Participants will not receive direct treatment o…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: St. Jude Children's Research Hospital • Aim: Knowledge-focused
Last updated May 16, 2026 22:26 UTC
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New scan may spot hidden pancreatic tumors in rare disease
Knowledge-focused Recruiting nowThis study follows people with von Hippel-Lindau (VHL) disease who have pancreatic tumors or cysts. The goal is to understand how these growths change over time and to see if a special PET scan (68-Gallium DOTATATE) can find tumors better than standard scans. About 740 participan…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE2 • Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated May 16, 2026 22:26 UTC
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New study aims to better understand von hippel lindau disease through data collection
Knowledge-focused Recruiting nowThis study collects information from 125 people with von Hippel Lindau (vHL) disease to track how the disease changes over time, what treatments they receive, and how it affects their quality of life. Participants must have a genetic or clinical diagnosis of vHL. The goal is to b…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: M.D. Anderson Cancer Center • Aim: Knowledge-focused
Last updated May 13, 2026 15:58 UTC
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New registry aims to shed light on rare diseases
Knowledge-focused Recruiting nowThis study is creating a large database to collect information about people with rare diseases like amyloidosis, sarcoidosis, and many others. Researchers will track participants' health, treatments, and outcomes over time to better understand these conditions. The goal is to imp…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: Hospital Italiano de Buenos Aires • Aim: Knowledge-focused
Last updated May 11, 2026 20:49 UTC