Scientists track rare cancer families to unlock genetic secrets
NCT ID NCT00001238
First seen Nov 01, 2025 · Last updated Apr 13, 2026 · Updated 26 times
Summary
This study aims to better understand inherited forms of kidney and urinary tract cancers, like Von Hippel-Lindau disease. Researchers will observe families with these conditions over time to learn how the diseases develop, what symptoms they cause, and how specific genetic changes are linked to different health outcomes. The goal is to gather knowledge that could help improve future diagnosis and care for these rare conditions.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
Conditions
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