Scientists track families to unlock secrets of inherited kidney cancer

NCT ID NCT00001238

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study follows families with a history of inherited kidney cancer to learn more about the disease's genetic causes and how it progresses. Researchers will collect blood, tissue, and urine samples from affected individuals and their relatives. The goal is to identify new genes linked to these cancers and improve future diagnosis and management. No experimental treatments are being tested.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could lead to better understanding of inherited kidney cancers and help identify new genetic targets for future treatments.

What could go wrong

This is an observational study, not a treatment trial. It may not directly benefit participants, and results may take many years to translate into therapies.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Birt-Hogg-Dube syndrome chromophobe renal cell carcinoma clear cell renal carcinoma hereditary clear cell renal cell carcinoma hereditary leiomyomatosis and renal cell cancer hereditary papillary renal cell carcinoma hereditary renal cell carcinoma kidney cancer kidney oncocytoma malignant urinary system neoplasm pheochromocytoma renal cell carcinoma von Hippel-Lindau disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-••••