New scan may spot hidden pancreatic tumors in rare disease
NCT ID NCT04074135
First seen Jan 12, 2026 · Last updated May 15, 2026 · Updated 17 times
Summary
This study follows people with von Hippel-Lindau (VHL) disease who have pancreatic tumors or cysts. The goal is to understand how these growths change over time and to see if a special PET scan (68-Gallium DOTATATE) can find tumors better than standard scans. About 740 participants aged 12 and older will have regular check-ups, blood tests, and imaging for life.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
Conditions
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