VON HIPPEL-LINDAU DISEASE
Clinical trials for VON HIPPEL-LINDAU DISEASE explained in plain language.
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New drug study aims to control rare genetic tumor disorder
Disease control Recruiting nowThis study is testing how well the drug belzutifan works for controlling tumors in people with von Hippel-Lindau (VHL) syndrome, a rare genetic condition that causes tumors in multiple organs. Researchers will follow 100 patients in Brazil to see how effectively the drug shrinks …
Matched conditions: VON HIPPEL-LINDAU DISEASE
Phase: PHASE2 • Sponsor: José Claudio Casali da Rocha • Aim: Disease control
Last updated Mar 30, 2026 14:30 UTC
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New pill targets multiple rare cancers in major trial
Disease control Recruiting nowThis study is testing an oral medication called belzutifan for people with advanced rare tumors, including pheochromocytoma, pancreatic neuroendocrine tumors, VHL disease-associated tumors, and certain gastrointestinal cancers. The main goal is to see how well the drug shrinks tu…
Matched conditions: VON HIPPEL-LINDAU DISEASE
Phase: PHASE2 • Sponsor: Merck Sharp & Dohme LLC • Aim: Disease control
Last updated Mar 24, 2026 12:01 UTC
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Scientists track rare pancreatic tumors to find better detection methods
Knowledge-focused Recruiting nowThis study aims to understand how pancreatic tumors develop in people with von Hippel-Lindau (VHL) disease, a rare genetic condition. Researchers will follow 740 participants aged 12 and older over many years, using regular scans and tests to track tumor growth. The study will te…
Matched conditions: VON HIPPEL-LINDAU DISEASE
Phase: PHASE2 • Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Mar 31, 2026 12:11 UTC
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Scientists hunt for hidden genetic causes of childhood cancers in families
Knowledge-focused Recruiting nowThis study aims to discover new genes that cause cancer to run in families, especially those affecting children. Researchers will collect health information, blood, and sometimes leftover tumor samples from families where multiple members have had cancer. The goal is to build a l…
Matched conditions: VON HIPPEL-LINDAU DISEASE
Sponsor: St. Jude Children's Research Hospital • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:30 UTC
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Scientists gather data to map rare genetic disease journey
Knowledge-focused Recruiting nowThis study aims to collect information from patients with Von Hippel Lindau (vHL) disease to better understand how the disease develops over time. Researchers will track tumor growth, treatment history, and quality of life in 125 participants. The goal is to identify patterns tha…
Matched conditions: VON HIPPEL-LINDAU DISEASE
Sponsor: M.D. Anderson Cancer Center • Aim: Knowledge-focused
Last updated Mar 19, 2026 14:56 UTC
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Hospital launches major effort to map the mysteries of rare diseases
Knowledge-focused Recruiting nowThis study aims to create a single, large registry to collect information on many different rare diseases. It will enroll about 380 patients already being treated at the Hospital Italiano de Buenos Aires who have one of the listed rare conditions. The goal is to gather data to be…
Matched conditions: VON HIPPEL-LINDAU DISEASE
Sponsor: Hospital Italiano de Buenos Aires • Aim: Knowledge-focused
Last updated Mar 10, 2026 12:53 UTC