VON HIPPEL LINDAU DISEASE
Clinical trials for VON HIPPEL LINDAU DISEASE explained in plain language.
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Frozen tumors, clearer vision? scientists dig into 20 years of eye records
Knowledge-focused CompletedThis study looks back at 20 years of medical records from 25 people who had a freezing treatment (cryotherapy) for retinal hemangioblastoma, a rare eye tumor often linked to von Hippel-Lindau disease. Researchers want to see how well the treatment controlled the tumors and affect…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: National Eye Institute (NEI) • Aim: Knowledge-focused
Last updated Jun 27, 2026 13:06 UTC
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20-Year study tests precision medicine for rare Brain-Skin disorders
Knowledge-focused CompletedThis completed study looked at 1,200 people with neurocutaneous syndromes (NF1, TSC, SWS, VHL) in Western China. Researchers compared those who received genetic testing, targeted drugs, and coordinated specialist care against those who got standard care. The goal was to see if pr…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: West China Hospital • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:09 UTC