VON HIPPEL LINDAU DISEASE
Clinical trials for VON HIPPEL LINDAU DISEASE explained in plain language.
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New hope for rare genetic tumor disorder: belzutifan trial launches
Disease control Recruiting nowThis study is for people with von Hippel-Lindau (VHL) syndrome, a rare genetic condition that causes tumors in various organs. Researchers want to see how well the drug belzutifan works at shrinking or controlling these tumors, and what side effects it may cause. About 100 partic…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE2 • Sponsor: José Claudio Casali da Rocha • Aim: Disease control
Last updated May 26, 2026 02:19 UTC
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New pill shows promise for rare cancers in phase 2 trial
Disease control Recruiting nowThis study tests a drug called belzutifan in people with certain rare or advanced cancers, including pheochromocytoma/paraganglioma, pancreatic neuroendocrine tumors, and tumors linked to von Hippel-Lindau disease. The goal is to see if the drug shrinks tumors or stops them from …
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE2 • Sponsor: Merck Sharp & Dohme LLC • Aim: Disease control
Last updated May 20, 2026 11:57 UTC
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Hope for advanced cancers: Long-Term belzutifan trial opens
Disease control Recruiting nowThis study looks at the long-term safety and effectiveness of the drug belzutifan in people with advanced solid tumors or von Hippel-Lindau (VHL) disease. Participants must already be taking belzutifan in another study. The main goal is to see how long people live after starting …
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE3 • Sponsor: Merck Sharp & Dohme LLC • Aim: Disease control
Last updated May 20, 2026 11:55 UTC
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New imaging agent could sharpen cancer detection
Diagnosis Recruiting nowThis study is testing a new type of PET/CT scan that uses a special tracer called 18F-T2 to find cancers that have high levels of a protein called CAIX. About 200 adults with cancers like kidney, bladder, lung, or breast cancer will get this scan to see if it works better than th…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: NA • Sponsor: Peking University First Hospital • Aim: Diagnosis
Last updated May 18, 2026 12:00 UTC
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New registry aims to shed light on rare diseases
Knowledge-focused Recruiting nowThis study is creating a large database to collect information about people with rare diseases like amyloidosis, sarcoidosis, and many others. Researchers will track patients' health, treatments, and outcomes over time. The goal is to better understand these conditions and improv…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: Hospital Italiano de Buenos Aires • Aim: Knowledge-focused
Last updated May 26, 2026 02:13 UTC
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New study gathers Real-World data on rare genetic disease
Knowledge-focused Recruiting nowThis study collects information from 125 people with von Hippel-Lindau (vHL) disease to better understand how the condition progresses and how treatments affect quality of life. Participants provide data on their disease status, surgeries, and therapies they have received. No new…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: M.D. Anderson Cancer Center • Aim: Knowledge-focused
Last updated May 20, 2026 11:55 UTC
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New study aims to unlock secrets of VHL pancreatic tumors
Knowledge-focused Recruiting nowThis study follows people with von Hippel-Lindau (VHL) disease who have growths in their pancreas. The goal is to learn how these tumors grow and change over time, and to test if a special type of scan (68-Gallium DOTATATE PET/CT) can find them better. Participants will have regu…
Matched conditions: VON HIPPEL LINDAU DISEASE
Phase: PHASE2 • Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated May 20, 2026 11:54 UTC
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Hunt for hidden cancer genes in families
Knowledge-focused Recruiting nowThis research study aims to discover new genes that may increase the risk of childhood cancer. Researchers will collect blood samples and health information from 1,500 people in families where cancer clusters. The goal is to build a registry and sample bank to help future diagnos…
Matched conditions: VON HIPPEL LINDAU DISEASE
Sponsor: St. Jude Children's Research Hospital • Aim: Knowledge-focused
Last updated May 19, 2026 12:00 UTC