Breakthrough hope: drug may stop epilepsy before it starts in TSC infants
NCT ID NCT05104983
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tests whether giving the drug sirolimus early in life can prevent or delay seizures in infants with tuberous sclerosis complex (TSC). About 64 babies under 7 months old will receive either sirolimus or a placebo. Researchers will track when seizures first appear and monitor safety.
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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
Contact
Contact
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60611, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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Contact
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Stanford University
RECRUITINGPalo Alto, California, 94304, United States
Contact
Contact Email: •••••@•••••
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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Contact
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University of California at Los Angeles
RECRUITINGLos Angeles, California, 90095, United States
Contact
Contact
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University of North Carolina at Chapel Hill
ACTIVE_NOT_RECRUITINGChapel Hill, North Carolina, 27510, United States
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University of Texas HSC at Houston
RECRUITINGHouston, Texas, 77030, United States
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Washington University -- St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact
Contact