TUBEROUS SCLEROSIS COMPLEX
Clinical trials for TUBEROUS SCLEROSIS COMPLEX explained in plain language.
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Real-world check: does CBD help tough seizures long-term?
Disease control Recruiting nowThis study follows 70-100 people with Lennox-Gastaut, Dravet, or TSC who are already prescribed Epidyolex (a CBD liquid). Researchers will track how many stay on the drug for a year and how many seizure-free days they have. The goal is to see how well it works in everyday life, n…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Sponsor: Jazz Pharmaceuticals • Aim: Disease control
Last updated May 17, 2026 01:48 UTC
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Breakthrough trial aims to stop epilepsy before it starts in TSC infants
Prevention Recruiting nowThis study tests whether giving sirolimus early can prevent or delay seizures in infants with tuberous sclerosis complex (TSC). About 64 babies under 7 months old will receive either sirolimus or a placebo. The goal is to see if the drug can stop epilepsy from developing and impr…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE2 • Sponsor: Darcy Krueger • Aim: Prevention
Last updated May 15, 2026 11:54 UTC
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New registry tracks pregnancy in rare diseases to boost safety
Knowledge-focused Recruiting nowThis study collects information from pregnant women with Tuberous Sclerosis Complex (TSC) or Lymphangioleiomyomatosis (LAM) and their babies. Researchers will track medication use, side effects, and pregnancy complications to learn how to better manage these conditions during pre…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Sponsor: David M. Ritter • Aim: Knowledge-focused
Last updated May 17, 2026 01:47 UTC
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App aims to improve kidney care for young adults
Knowledge-focused Recruiting nowThis study tests whether a smartphone app can help doctors and young adults (ages 16-29) with chronic kidney disease follow the latest treatment guidelines. The app provides reminders, education, and care recommendations. Researchers will check if using the app leads to better bl…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: NA • Sponsor: St. James's Hospital, Ireland • Aim: Knowledge-focused
Last updated May 15, 2026 11:55 UTC