Massive TSC data & sample collection launches to fuel future discoveries
NCT ID NCT05676099
First seen May 18, 2026 · Last updated May 22, 2026 · Updated 2 times
Summary
This study is creating a large collection of blood, DNA, and tissue samples along with health information from up to 5,000 people with tuberous sclerosis complex (TSC) or a related condition called LAM. Researchers will use these samples and data to better understand how TSC affects people over their lifetime. The goal is to provide a resource for scientists to study the disease and potentially develop new treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, United States
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Centre Hospitalier de l'Université de Montréal
RECRUITINGMontreal, Canada
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Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago
RECRUITINGChicago, Illinois, United States
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Children's Mercy Research Institute
RECRUITINGKansas City, Missouri, 64108, United States
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Children's National Medical Center
RECRUITINGFairfax, Virginia, United States
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, United States
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Cleveland Clinic Foundation
RECRUITINGCleveland, Ohio, United States
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Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center
COMPLETEDOakland, California, United States
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Le Bonheur Children's Hospital
RECRUITINGMemphis, Tennessee, United States
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Loma Linda University Children's Hospital
RECRUITINGLoma Linda, California, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, United States
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Memorial Hermann-Texas Medical Center (University of Texas Houston)
RECRUITINGHouston, Texas, United States
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Minnesota Epilepsy Group
RECRUITINGRoseville, Minnesota, United States
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New York University Medical Center
RECRUITINGNew York, New York, United States
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Nicklaus Children's Hospital
RECRUITINGMiami, Florida, United States
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Sainte-Justine Université de Montréal
RECRUITINGMontreal, Canada
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Scottish Rite Hospital for Children
RECRUITINGDallas, Texas, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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TSC Alliance
RECRUITINGSilver Spring, Maryland, 20910, United States
Contact Email: •••••@•••••
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Texas Childrens Hospital Baylor College of Medicine
RECRUITINGHouston, Texas, 77030, United States
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The Children's Hospital
RECRUITINGDenver, Colorado, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Alabama Birmingham
RECRUITINGBirmingham, Alabama, United States
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University of California Los Angeles
RECRUITINGLos Angeles, California, 90095, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Iowa Hospitals and Clinics
RECRUITINGIowa City, Iowa, United States
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University of Pennsylvania Medical Center
RECRUITINGPhiladelphia, Pennsylvania, United States
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University of Rochester Medical Center
RECRUITINGRochester, New York, 14642, United States
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Washington University in St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
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Conditions
Explore the condition pages connected to this study.