Massive TSC data and tissue bank opens to researchers
NCT ID NCT05676099
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is building a large collection of blood, DNA, and tissue samples along with health records from up to 5,000 people with tuberous sclerosis complex (TSC) or a related condition called lymphangioleiomyomatosis. Participants can give blood or cheek swab samples and allow researchers to track their health over time. The goal is to provide scientists with the materials they need to better understand TSC and develop new treatments.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, United States
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Centre Hospitalier de l'Université de Montréal
RECRUITINGMontreal, Canada
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Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago
RECRUITINGChicago, Illinois, United States
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Children's Mercy Research Institute
RECRUITINGKansas City, Missouri, 64108, United States
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Children's National Medical Center
RECRUITINGFairfax, Virginia, United States
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, United States
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Cleveland Clinic Foundation
RECRUITINGCleveland, Ohio, United States
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Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center
COMPLETEDOakland, California, United States
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Le Bonheur Children's Hospital
RECRUITINGMemphis, Tennessee, United States
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Loma Linda University Children's Hospital
RECRUITINGLoma Linda, California, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, United States
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Memorial Hermann-Texas Medical Center (University of Texas Houston)
RECRUITINGHouston, Texas, United States
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Minnesota Epilepsy Group
RECRUITINGRoseville, Minnesota, United States
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New York University Medical Center
RECRUITINGNew York, New York, United States
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Nicklaus Children's Hospital
RECRUITINGMiami, Florida, United States
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Sainte-Justine Université de Montréal
RECRUITINGMontreal, Canada
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Scottish Rite Hospital for Children
RECRUITINGDallas, Texas, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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TSC Alliance
RECRUITINGSilver Spring, Maryland, 20910, United States
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Texas Childrens Hospital Baylor College of Medicine
RECRUITINGHouston, Texas, 77030, United States
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The Children's Hospital
RECRUITINGDenver, Colorado, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Alabama Birmingham
RECRUITINGBirmingham, Alabama, United States
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University of California Los Angeles
RECRUITINGLos Angeles, California, 90095, United States
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University of Iowa Hospitals and Clinics
RECRUITINGIowa City, Iowa, United States
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University of Pennsylvania Medical Center
RECRUITINGPhiladelphia, Pennsylvania, United States
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University of Rochester Medical Center
RECRUITINGRochester, New York, 14642, United States
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Washington University in St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
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