TUBEROUS SCLEROSIS COMPLEX
Clinical trials for TUBEROUS SCLEROSIS COMPLEX explained in plain language.
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New study tests everolimus for kidney tumors in TSC patients
Disease control OngoingThis study looks at how safe and effective the drug everolimus is for Taiwanese adults with tuberous sclerosis complex (TSC) who have kidney tumors called angiomyolipomas. Four participants will take the drug and be monitored for side effects and tumor shrinkage. The goal is to c…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE4 • Sponsor: Novartis Pharmaceuticals • Aim: Disease control
Last updated Jun 27, 2026 13:05 UTC
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CBD epilepsy drug under Real-World watch for rare seizure disorders
Disease control OngoingThis study follows about 111 people with Lennox-Gastaut syndrome, Dravet syndrome, or tuberous sclerosis complex who are taking Epidyolex (a CBD oral solution) for seizures. Researchers track how many stay on the drug for a year and how many seizure-free days they have. It's an o…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Sponsor: Jazz Pharmaceuticals • Aim: Disease control
Last updated Jun 27, 2026 13:01 UTC
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Drug shows promise for Long-Term seizure control in rare disease
Disease control OngoingThis study looks at the long-term safety of everolimus in people with tuberous sclerosis complex (TSC) who have seizures that are hard to control. Participants are already taking everolimus and benefiting from it in an earlier study. The goal is to see if the drug remains safe an…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE3 • Sponsor: Novartis Pharmaceuticals • Aim: Disease control
Last updated Jun 27, 2026 12:03 UTC
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New drug radiprodil tested for tough seizures in two brain conditions
Disease control OngoingThis early-phase trial tests an experimental drug called radiprodil in 30 people with tuberous sclerosis complex or focal cortical dysplasia type II whose seizures have not responded to at least two other medications. The study is open-label, meaning everyone gets the drug, and w…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE1, PHASE2 • Sponsor: GRIN Therapeutics, Inc. • Aim: Disease control
Last updated Jun 27, 2026 12:02 UTC
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New PET scan could reveal early drug response in rare lung disease
Diagnosis OngoingThis study tests whether a special PET scan using [11C]acetate can detect early signs that the drug rapamycin is working in people with lymphangioleiomyomatosis (LAM), a rare lung disease. Seven adults with LAM and kidney tumors will get one or two scans over 3–6 months. The goal…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE1, PHASE2 • Sponsor: Brigham and Women's Hospital • Aim: Diagnosis
Last updated Jun 27, 2026 08:12 UTC
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Epidiolex liver check: is Long-Term use safe?
Knowledge-focused OngoingThis study follows 154 people taking Epidiolex (cannabidiol) for seizures caused by Lennox-Gastaut syndrome, Dravet syndrome, or tuberous sclerosis complex. Researchers will monitor for signs of chronic liver injury and fibrosis over time using blood tests and liver scans. The go…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE4 • Sponsor: Jazz Pharmaceuticals • Aim: Knowledge-focused
Last updated Jul 01, 2026 00:00 UTC