New registry aims to unlock secrets of brain stimulation in kids

NCT ID NCT06585618

Recruiting now Knowledge-focused Sponsor: Boston Children's Hospital Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study is creating a shared database of children who have received deep brain stimulation (DBS) for movement disorders like dystonia, epilepsy, or Tourette syndrome. By pooling data from multiple hospitals, researchers hope to answer key questions about who benefits most and which brain targets work best. The registry will include up to 100 children aged 0-18 who have had or are scheduled for DBS.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: deep brain stimulation
What this could lead to: If successful, this registry could help doctors better understand which children benefit most from DBS and how to improve treatment for movement disorders.
What could go wrong: This is an observational registry, not a treatment trial. It collects existing data, so it won't directly test a new therapy or guarantee better outcomes for participants.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

cerebral palsy childhood-onset epilepsy syndrome choreatic disease Dyskinesias Dystonia dystonic disorder epilepsy movement disorder nervous system disorder obsessive-compulsive disorder Tourette syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CEREBRAL PALSY DEEP BRAIN STIMULATION DYSTONIA EPILEPSY IN CHILDREN MOVEMENT DISORDERS MOVEMENT DISORDERS IN CHILDREN NEUROLOGIC DISORDER OBSESSIVE-COMPULSIVE DISORDER TOURETTE SYNDROME

Contacts and locations

Locations

Boston Children's Hospital
RECRUITING

Boston, Massachusetts, 02215, United States

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