New registry aims to unlock secrets of brain stimulation in kids

NCT ID NCT06585618

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study is creating a shared database of children who have received deep brain stimulation (DBS) for movement disorders like dystonia, epilepsy, or Tourette syndrome. By pooling data from multiple hospitals, researchers hope to answer key questions about who benefits most and which brain targets work best. The registry will include up to 100 children aged 0-18 who have had or are scheduled for DBS.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

deep brain stimulation

What this could lead to

If successful, this registry could help doctors better understand which children benefit most from DBS and how to improve treatment for movement disorders.

What could go wrong

This is an observational registry, not a treatment trial. It collects existing data, so it won't directly test a new therapy or guarantee better outcomes for participants.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

cerebral palsy childhood-onset epilepsy syndrome choreatic disease Dyskinesias Dystonia dystonic disorder epilepsy movement disorder nervous system disorder obsessive-compulsive disorder Tourette syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Boston Children's Hospital

    RECRUITING

    Boston, Massachusetts, 02215, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••