CAREGIVER BURDEN

This study compares two programs designed to prevent delirium (sudden confusion) in older adults during hospital stays. One program uses hospital staff, while the other also involves family members. Researchers will track which approach works better for 1,900 patients aged 70 and…

This study tests a 16-week partner exercise program called BUDPA for people with mild dementia and their family caregivers. The program includes group training and home practice to improve thinking, mood, and relationship quality. Researchers will follow 236 pairs to see if the p…

This pilot study tests a brief psychotherapy program for young adults (ages 25-39) with cancer and their caregiving partners. The therapy uses cognitive-behavioral and couples therapy techniques to improve coping and maintain the relationship. The study will enroll 20 couples to …

This study tests whether LSD can reduce anxiety, pain, and depression in people with advanced or terminal illnesses. Sixty participants will receive either moderate to high doses of LSD or a very low dose as a placebo. The goal is to see if LSD can improve quality of life and eas…

This study tests a program called SNAP that helps head and neck cancer survivors and their caregivers after radiation treatment. The program includes a needs assessment, a personalized care plan, and a mobile app. Researchers want to see if it reduces symptoms for survivors and e…

This study is testing a mobile app called CarePair that helps family caregivers of people with dementia find services and support. About 80 caregivers will use the app for six weeks to see if it reduces stress, depression, and feelings of being overwhelmed. The goal is to make ca…

This study tests a type of talk therapy called Meaning-Centered Psychotherapy for Caregivers (MCP-C) to see if it helps reduce stress, burnout, and depression in people caring for a loved one with advanced cancer. About 200 caregivers will be randomly assigned to either MCP-C or …

This study tests an 8-week online program called STELLA-R that teaches dementia caregivers a simple ABC method to understand and respond to upsetting behaviors. About 238 caregivers in Oregon, Washington, and Idaho will try the program and report how it affects their stress and r…

This study tests whether a mobile app called Brain CareNotes can reduce the stress and burden felt by unpaid caregivers of people with Alzheimer's or related dementias. The app offers coaching and tips to manage challenging behaviors like agitation or wandering. Over 12 months, 1…

This study tests a new psychoeducation program led by an advanced practice nurse to reduce the burden on family caregivers of young adults (ages 18-35) who have had a first psychotic episode. The program includes individual and group sessions to support caregivers. Researchers wi…

This study tests a digital program called TPA4You that uses a Fitbit to help older adults (age 50+) who care for a family member with heart failure become more physically active. The goal is to see if the program is practical and can improve daily activity, reduce sitting time, a…

This study tests a web-based program that helps stroke survivors and their family caregivers work together on arm exercises at home. The goal is to improve the survivor's arm use and daily function while also supporting the caregiver's well-being. About 220 participants (survivor…

This study tests whether a 5-week group therapy program called Acceptance and Commitment Therapy (ACT) can reduce stress and improve quality of life for family caregivers of stroke survivors. About 30 caregivers aged 40 or older who provide most of the care for a stroke survivor …

This study tests whether a telephone counseling program helps people with advanced gastrointestinal cancer manage fatigue and helps their family caregivers feel less burdened. About 488 patient-caregiver pairs will take part, receiving either the counseling program or a standard …

This study tests a talk therapy called EASE for parents whose child has cancer. The goal is to see if it reduces traumatic stress symptoms over six months. About 306 parents will take part, answering questionnaires at several points. The therapy is added to usual care and compare…

This study looks at how stress and sleep affect the mood and brain health of people caring for a loved one with dementia. About 120 caregivers aged 55 and older will receive one of two types of talk therapy. Researchers will track their mood, activity, and brain scans to see whic…

This study tests whether Jing Si Herbal Tea, taken twice daily, can improve quality of life and sleep for people with dementia and their caregivers. Researchers will first test the tea's feasibility in 100 people with dementia, then conduct a larger placebo-controlled trial with …

This study tests a smartphone app called Brain CareNotes designed to reduce stress and burden for people caring for a loved one with Alzheimer's or related dementia in rural areas. About 60 unpaid caregivers will use either the Brain CareNotes app or a basic education app for six…

This study tests a video-based program called STELLA-FTD that helps family members caring for a loved one with frontotemporal dementia (FTD). The program teaches caregivers how to manage difficult behaviors and connect with community resources. Researchers will enroll 640 caregiv…

This study looks at whether people with Alzheimer's disease have more trouble swallowing than healthy older adults. Researchers will test swallowing, coughing, and muscle strength in 240 people, and ask caregivers about their experiences. The goal is to better understand how swal…

This study tests a training program called the Pain Identification and Communication Toolkit (PICT) for family caregivers of people with Alzheimer's disease or related dementias. The program teaches caregivers how to spot signs of pain and talk about it with doctors. Researchers …

This study explores whether offering free legal services to people with advanced colorectal cancer and their caregivers can reduce financial and emotional stress. About 20 patient-caregiver pairs will receive personalized legal help from a nonprofit organization. Researchers will…

This study is testing a chatbot called DAPHNE to see if it helps caregivers of children find resources for needs like food, housing, or healthcare. About 70 caregivers and their doctors will use the chatbot or standard care for 6 months. Researchers will check if the chatbot is e…

This study tests a 4-week training program for assisted living staff (nurses, administrators, and coordinators) to improve palliative care for residents with dementia. The goal is to increase advance care planning discussions and reduce caregiver burnout. About 792 participants f…