CAREGIVER BURDEN

This study looks at how to best support parents and caregivers of children with tracheostomies after they leave the hospital. About 480 caregivers will be randomly assigned to receive either a standard discharge program or one with extra support. Researchers will measure caregive…

This study tests a 6-week online program called Learning Skills Together (LST) for family caregivers of people with Alzheimer's or related dementias. The program includes weekly Zoom group sessions and a workbook covering topics like communication, medication management, and home…

This study compares a home-based, tailored sleep therapy (CBT-I) to a web-based version for 80 caregivers who have insomnia while caring for a child with autism. The goal is to see which approach is more acceptable and feasible for improving sleep and reducing caregiver burden. P…

This study tests a 3-month strength training program designed for Hispanic prostate cancer survivors and their caregivers. Participants exercise together in remote group classes to improve physical and mental health. The goal is to see if the program is practical and helpful for …

This study tests an online Emergency Preparedness Toolkit for caregivers of people with dementia. The toolkit helps caregivers find a backup caregiver so they can focus on their own health needs during an emergency. About 68 caregivers aged 55 and older who live with their partne…

This study tests a website tool called WeCareToFeedDysphagia to see if it reduces stress and burden for people caring for older adults with Alzheimer's disease or related dementias who also have trouble swallowing. About 800 caregivers will be split into two groups: one gets acce…

This study tests an 8-week online program called SAGE LEAF that teaches positive emotion skills to family caregivers of people with dementia. The goal is to see if it can reduce caregiver burden, loneliness, and depression while boosting positive feelings and confidence. About 53…

This study tests whether adding a caregiver training program to a visual mapping assistive technology (MapHabit) improves daily life for people with Alzheimer's or dementia and reduces stress for their caregivers. Fifty patient-caregiver pairs will use either the technology alone…

This study looks at what affects the daily mental health of Hispanic and Latinx people caring for a relative with memory problems or dementia. About 300 caregivers will fill out surveys online for three weeks, plus follow-ups at six and twelve months. The goal is to find what hel…

This study tests a telehealth program called PIC-TRFS for older adults (50+) who spent at least 48 hours in the ICU and are at risk for long-term problems. The program includes rehabilitation, health management, social support, and care coordination delivered over 6 months. Resea…

This study aimed to understand how common swallowing difficulties are in older adults after an ICU stay and how these problems affect recovery and quality of life. It planned to observe participants over time without providing any treatment. The study was withdrawn before enrolli…