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New video program aims to ease the burden on FTD family caregivers

NCT ID NCT06613204

Symptom relief Sponsor: Oregon Health and Science University Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests a video-based program called STELLA-FTD that helps family members caring for a loved one with frontotemporal dementia (FTD). The program teaches caregivers how to manage difficult behaviors and connect with community resources. Researchers will enroll 640 caregivers across the U.S. to see if the program reduces stress and improves confidence in handling daily challenges.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 640 people

The number the study aims to enrol. It can still change while the study runs.

Started

Jun 2025

Expected to finish

Jun 2029

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 to 100 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Family Care Partner * Adult caring for family member with FTD. * Provides 4 or more hours of care/week. Does not have to reside with. * Identifies at least 2 moderately upsetting behaviors in the person with FTD. * Speaks and understands English to be able to participate in intervention. * Owns a telephone (smartphone, cell phone or landline). * Has email and mailing address to receive computer, study materials and surveys. * Provides informed consent to participate in the research. * Lives in the US Inclusion Criteria: Person with FTD * Diagnosis of FTD * Family member of a Care Partner (this can be a relative, spouse, or close kin that is considered family). * Lives in US Exclusion Criteria: Person with FTD * No Frontotemporal Degeneration diagnosis. * Unable to leave Care Partner during STELLA-FTD sessions. * Enrolled in hospice. Exclusion Criteria: Family Care Partner * Unable to find activity for Care Recipient during STELLA-FTD sessions to allow Care Partner to work privately with Guide and other Care Partners. * Hearing and/or vision problems severe enough to prevent participation. * Refuses to be video-recorded during STELLA-FTD sessions. * Unwilling or unable to adequately follow study instructions and participate in study procedures.

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Conditions

The condition(s) this trial relates to.

Caregiver Burden Corticobasal Degeneration corticobasal syndrome frontotemporal dementia primary progressive aphasia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Caregiver burden Corticobasal syndrome Frontotemporal dementia Primary progressive aphasia(PPA)

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Oregon Health & Science University

    RECRUITING

    Portland, Oregon, 97239, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.