Scientists track rare brain diseases to uncover early warning signs

NCT ID NCT01799915

First seen Jun 11, 2026 · Last updated Jun 11, 2026

Summary

This study follows 800 adults with synucleinopathies—diseases like Parkinson's, Lewy body dementia, and multiple system atrophy—to learn how they develop and change over time. Researchers will track symptoms, biological markers, and early signs like dizziness on standing or dream-acting to find clues that predict disease spread to the brain. The goal is to better understand these rare conditions, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Beth Israel Deaconess Medical Center

    RECRUITING

    Boston, Massachusetts, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • BioCruces Research Institute - Hospital Universitario de Cruces

    RECRUITING

    Bilbao, Spain

    Contact Email: •••••@•••••

    Contact

  • FLENI - Fundación para la Lucha contras las Enfermedades Neurológicas

    RECRUITING

    Buenos Aires, Argentina

    Contact Email: •••••@•••••

    Contact

  • Mayo Clinic

    RECRUITING

    Rochester, Minnesota, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • NYU Medical Center

    RECRUITING

    New York, New York, 10016, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Seoul National University Hospital

    RECRUITING

    Seoul, South Korea

    Contact Email: •••••@•••••

    Contact

  • University of Michigan

    RECRUITING

    Ann Arbor, Michigan, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Vanderbilt Univeristy

    RECRUITING

    Nashville, Tennessee, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.