Planning ahead: could a simple program transform Parkinson's care?

NCT ID NCT05954013

Completed Disease control Sponsor: Radboud University Medical Center Source: ClinicalTrials.gov ↗

First seen Aug 14, 2026 · Last updated Aug 14, 2026

Summary

This trial tests a program called PD_Pal, where a specially trained nurse helps people with Parkinson's and their family caregivers create a personalized care plan. The plan covers current care, future needs, and end-of-life preferences, aiming to ensure that care matches what the person wants. The study compares this approach to usual care across seven European countries, measuring whether more participants have their care preferences documented in medical records after six months. It also looks at quality of life, care coordination, and cost-effectiveness.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: PD_Pal intervention: a nurse-led program combining advance care planning conversations and care coordination, supported by a Parkinson Support Plan workbook
What this could lead to: If effective, this program could become a standard way to help people with Parkinson's and their families plan future care, improving quality of life and ensuring care matches personal preferences.
What could go wrong: The trial is relatively small and open-label, so results may be influenced by expectations. The intervention's success depends on nurse training and patient engagement, which may vary across countries.

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Conditions

The condition(s) this trial relates to.

Parkinson disease parkinsonian disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

PARKINSON DISEASE PARKINSONISM

Contacts and locations

Locations

Estonian Movement Disorders Society

Tartu, Estonia
Paracelsus Medical University

Salzburg, Austria
Philipps University Marburg Medical Center

Marburg, Germany
Skane University Hospital

Lund, Sweden
University College, London

London, United Kingdom
University of Ioannina

Ioannina, Greece
University of Padova

Padova, Italy

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