Could sharing lived experiences ease the burden of dementia care?

NCT ID NCT07757178

Recruiting now Symptom relief Sponsor: University of Nottingham Source: ClinicalTrials.gov ↗

First seen Aug 11, 2026 · Last updated Aug 12, 2026 · Updated 1 time

Summary

This study is developing and testing an online platform called LEND that shares personal stories from people with dementia and their carers. The goal is to see if these relatable narratives can boost wellbeing, confidence, and quality of life for both groups. The trial involves interviews, user testing, and a small feasibility study with 60 participants to assess whether the approach is acceptable and practical for a larger future trial.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Online LEND Intervention - a web-based platform providing personalised lived-experience narratives for people with dementia and their carers
What this could lead to: If it works, this could offer a new, accessible way to support emotional wellbeing and confidence for people with dementia and their carers, potentially improving quality of life without medication.
What could go wrong: This is an early feasibility study, so the intervention is still being designed and tested for usability. It may not show clear benefits, and results may not apply to everyone with dementia.

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Caregiver Burden dementia neurodegenerative disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ALZHEIMER DISEASE CAREGIVER BURDEN CAREGIVER BURNOUT DEMENTIA NEURO-DEGENERATIVE DISEASE

Contacts and locations

Locations

Mental Health & Clinical Neurosciences, Institute of Mental Health
RECRUITING

Nottingham, England, NG7 2TU, United Kingdom
Nottinghamshire Healthcare NHS Foundation , Highbury Hospital
RECRUITING

Nottingham, NG6 9DR, United Kingdom

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