New patient registry aims to unlock secrets of rare cancer
NCT ID NCT04690374
First seen Jan 12, 2026 · Last updated May 01, 2026 · Updated 15 times
Summary
This study creates a database of health information from 250 people diagnosed with desmoplastic small round cell tumor (DSRCT), a rare cancer. Participants of any age can join by sharing their medical history and ongoing health data. Researchers will use this information to learn more about DSRCT and support future research.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-••••
Locations
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Memorial Sloan Kettering Cancer Center (All Protocol Activities)
RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
Contact
Contact Phone: •••-•••-••••
Conditions
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