Massive blood disorder registry aims to transform care

NCT ID NCT06820515

Recruiting now Knowledge-focused Sponsor: American Thrombosis and Hemostasis Network Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is a large registry that collects health information from up to 200,000 people with blood disorders such as hemophilia, thrombosis, and sickle cell disease. Participants are seen at Hemophilia Treatment Centers across the U.S. The goal is to gather real-world data to help doctors, researchers, and policymakers improve treatment and public health reporting. No experimental treatments are given; it is purely observational.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could provide insights that lead to better treatments and care guidelines for people with blood disorders.
What could go wrong: This is an observational registry, not a treatment trial. It collects data but does not test any intervention, so direct benefits to participants are unlikely.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Glanzmann thrombasthenia Glanzmann thrombasthenia 1 hemarthrosis hematologic disorder hemophilia hemophilia A hemophilia B hemorrhagic disease hereditary von Willebrand disease sickle cell disease thrombotic disease vascular hemostatic disease von Willebrand disease (hereditary or acquired)

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BLEEDING DISORDER BLOOD DISORDER GLANZMANN THROMBASTHENIA HEMOPHILIA HEMOPHILIA A HEMOPHILIA B SICKLE CELL DISEASE THROMBOSIS VON WILLEBRAND DISEASES

Contacts and locations

Locations

American Thrombosis and Hemostasis Network
RECRUITING

Hickory, North Carolina, 28601, United States

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