Massive blood disorder registry launches to transform care

NCT ID NCT06820515

First seen May 10, 2026 · Last updated May 10, 2026

Summary

This study is creating a huge database of health information from up to 200,000 people with blood disorders like hemophilia, sickle cell disease, and thrombosis. Researchers will use this data to better understand these conditions and improve treatments. Anyone seen at a participating treatment center can join, regardless of age.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • American Thrombosis and Hemostasis Network

    RECRUITING

    Hickory, North Carolina, 28601, United States

    Contact Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.