Massive blood disorder registry aims to transform care
NCT ID NCT06820515
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is a large registry that collects health information from up to 200,000 people with blood disorders such as hemophilia, thrombosis, and sickle cell disease. Participants are seen at Hemophilia Treatment Centers across the U.S. The goal is to gather real-world data to help doctors, researchers, and policymakers improve treatment and public health reporting. No experimental treatments are given; it is purely observational.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could provide insights that lead to better treatments and care guidelines for people with blood disorders.
What could go wrong
This is an observational registry, not a treatment trial. It collects data but does not test any intervention, so direct benefits to participants are unlikely.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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American Thrombosis and Hemostasis Network
RECRUITINGHickory, North Carolina, 28601, United States
Contact Email: •••••@•••••