Can Co-Designed support help parents embrace sickle cell care?

This study aims to understand why some parents of children with sickle cell disorder (SCD) may not engage with health services during the first year after diagnosis, and to co-design strategies with parents and health professionals to improve support accessibility. The research involves parents whose children were diagnosed via screening in the last 36 months and health professionals involved in their care. By identifying barriers and priorities, the goal is to create more accessible support that encourages early engagement, potentially preventing complications and improving the child's health.