DRAVET SYNDROME
Clinical trials for DRAVET SYNDROME explained in plain language.
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Real-world check: does CBD help tough seizures long-term?
Disease control Recruiting nowThis study follows 70-100 people with Lennox-Gastaut, Dravet, or TSC who are already prescribed Epidyolex (a CBD liquid). Researchers will track how many stay on the drug for a year and how many seizure-free days they have. The goal is to see how well it works in everyday life, n…
Matched conditions: DRAVET SYNDROME
Sponsor: Jazz Pharmaceuticals • Aim: Disease control
Last updated May 17, 2026 03:57 UTC
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New hope for kids with severe seizures: ION337 trial launches
Disease control Recruiting nowThis study tests a new medicine called ION337 in children aged 2 to 12 with Dravet syndrome, a severe form of epilepsy. The main goal is to see if the drug is safe and tolerable. The medicine is given as an injection into the spine. Researchers will also measure how the body proc…
Matched conditions: DRAVET SYNDROME
Phase: PHASE1, PHASE2 • Sponsor: Ionis Pharmaceuticals, Inc. • Aim: Disease control
Last updated May 15, 2026 11:54 UTC
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Hope for dravet families: phase 3 trial of zorevunersen launches
Disease control Recruiting nowThis study tests a new drug, zorevunersen, in 170 children aged 2 to 17 with Dravet syndrome, a severe form of epilepsy. The goal is to see if the drug can reduce seizure frequency and improve daily living skills compared to a sham procedure. Participants will be randomly assigne…
Matched conditions: DRAVET SYNDROME
Phase: PHASE3 • Sponsor: Stoke Therapeutics, Inc • Aim: Disease control
Last updated May 11, 2026 20:51 UTC
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Gene therapy trial aims to tame severe seizures in young children
Disease control Recruiting nowThis study tests a gene therapy called ETX101 in infants and children with Dravet syndrome, a severe form of epilepsy caused by a genetic change. The treatment uses a harmless virus to deliver a working copy of the gene to help control seizures. The trial will include up to 47 pa…
Matched conditions: DRAVET SYNDROME
Phase: PHASE1, PHASE2 • Sponsor: Encoded Therapeutics • Aim: Disease control
Last updated May 11, 2026 20:38 UTC
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New hope for dravet syndrome: phase 3 trial aims to cut seizure frequency
Disease control Recruiting nowThis study tests an experimental drug called LP352 to see if it can safely reduce seizures in children and adults with Dravet syndrome, a severe form of epilepsy. About 160 participants will receive either LP352 or a placebo, and researchers will track changes in seizure frequenc…
Matched conditions: DRAVET SYNDROME
Phase: PHASE3 • Sponsor: Longboard Pharmaceuticals • Aim: Disease control
Last updated May 07, 2026 18:39 UTC
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New study tracks how dravet syndrome progresses over four years
Knowledge-focused Recruiting nowThis study follows 50 people aged 6 months to 21 years with Dravet syndrome caused by SCN1A gene mutations. Researchers will measure changes in thinking, movement, and daily skills over 4 years using standard tests. They will also look for blood markers linked to the disease. The…
Matched conditions: DRAVET SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 17, 2026 03:57 UTC
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Brain scans aim to uncover why dravet patients face higher sudden death risk
Knowledge-focused Recruiting nowThis study uses PET and MRI scans to look at serotonin pathways in the brainstem of adults with Dravet syndrome, a severe epilepsy. Researchers want to see if these pathways are different in Dravet patients compared to those with other drug-resistant epilepsy and healthy people. …
Matched conditions: DRAVET SYNDROME
Phase: NA • Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated May 13, 2026 16:04 UTC
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Real-world study aims to unlock secrets of rare childhood epilepsies
Knowledge-focused Recruiting nowThis study follows 1,000 children and teens with rare epileptic syndromes like West and Dravet syndrome. Researchers want to see how different treatments affect seizure control and thinking skills over time. The goal is to gather real-life data to help doctors and families make b…
Matched conditions: DRAVET SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 13, 2026 16:02 UTC