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Scientists track 1,000 kids with rare epilepsies to uncover better treatments

NCT ID NCT05126914

Recruiting now Knowledge-focused Sponsor: Assistance Publique - Hôpitaux de Paris Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 1,000 children and teens with rare epilepsies (like West and Dravet syndromes) to see how different treatments affect their seizures and thinking skills. Researchers will compare care across hospitals to find what works best. The goal is to give families clearer information and help doctors make better treatment choices.

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Conditions

The condition(s) this trial relates to.

Dravet syndrome Epilepsies, Myoclonic epilepsy infantile spasms Spasms, Infantile

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DRAVET SYNDROME EPILEPSY WEST SYNDROME

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • CHRU Lille

    RECRUITING

    Lille, 59000, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Angers

    RECRUITING

    Angers, 49933, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Strasbourg- Hôpital de Hautepierre

    RECRUITING

    Strasbourg, 67098, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Bordeaux

    RECRUITING

    Bordeaux, 33076, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Brest - Hôpital de la Cavale Blanche

    RECRUITING

    Brest, 29200, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Tours - hôpital Clocheville

    RECRUITING

    Tours, 37044, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • HFME - HospiceS Civils De Lyon

    RECRUITING

    Lyon, 69000, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hopital Robert Debré - Neurologie

    RECRUITING

    Paris, 75019, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hôpital La Timone - APHM

    RECRUITING

    Marseille, 13005, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hôpital Necker - APHP

    RECRUITING

    Paris, 75015, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hôpital Purpan - CHU de Toulouse

    RECRUITING

    Toulouse, 31000, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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