What does life feel like for children with a rare birth defect? a new study asks
NCT ID NCT06439862
First seen Aug 05, 2026 · Last updated Aug 06, 2026 · Updated 1 time
Summary
This study aims to understand the quality of life of school-aged children who were treated for posterior urethral valves (PUV) in their first year of life. PUV is a rare birth defect that can affect kidney and bladder function. Researchers will use a standard questionnaire called PedsQL 4.0 to measure how these children feel about their physical, emotional, social, and school life, and will also ask parents for their perspective. The goal is to gather information that can help improve care and support for children with this condition.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could provide a clearer picture of how posterior urethral valves affect children's daily lives, helping families and doctors make more informed decisions about care and support.
- What could go wrong
- This is an observational study, so it won't test a new treatment. The results may not apply to all children with this condition, and quality of life is subjective, varying from child to child.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Femme-Mère-Enfant Hospital
RECRUITINGBron, Bron, France
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