New study reveals hidden costs of premature baby care

NCT ID NCT07192393

Recruiting now Knowledge-focused Sponsor: Imperial College London Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This UK study follows 90 families of very premature babies (born before 30 weeks) for one year after hospital discharge. It measures how caring for a baby with or without necrotising enterocolitis (NEC)—a serious bowel disease—affects the family's finances, emotions, and quality of life. Parents fill out questionnaires at three time points to capture health, wellbeing, and out-of-pocket costs. The results will help the NHS decide whether certain feeding practices during blood transfusions are worth adopting.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could provide clear evidence on the true costs and emotional toll of caring for premature babies with NEC, helping shape better NHS policies and family support.
What could go wrong: This is a small observational study (90 families) that only measures outcomes—it does not test a new treatment. Results may not apply to all families or settings.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for NECROTISING ENTEROCOLITIS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

necrotizing enterocolitis Premature Birth

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

NECROTISING ENTEROCOLITIS PREMATURITY; DECISION SUPPORT PREMATURITY; EXTREME PRETERM PRETERM BIRTH PRETERM INFANT HEALTH

Contacts and locations

Locations

Chelsea & Westminster Hospital
RECRUITING

London, United Kingdom
Imperial College Healthcare NHS Trust (St Mary's Hospital, Paddington)
RECRUITING

London, United Kingdom
John Radcliffe Hospital
RECRUITING

Oxford, United Kingdom
Liverpool Women's Hospital
RECRUITING

Liverpool, United Kingdom
Norfolk and Norwich University Hospital
RECRUITING

Norwich, Norfolk, United Kingdom
Queen Alexandra Hospital
RECRUITING

Portsmouth, United Kingdom
University Hospital Coventry
RECRUITING

Coventry, United Kingdom

More trials for these conditions

Other studies related to the condition(s) this trial covers.