Premature baby care costs families more than money – new study measures the real toll
NCT ID NCT07192393
First seen Nov 01, 2025 · Last updated Jun 22, 2026 · Updated 41 times
Summary
This UK study follows 90 families of very premature babies (born before 30 weeks) for one year after hospital discharge. It measures how a serious bowel condition called NEC affects the baby's health, family finances, and emotional wellbeing. Parents fill out questionnaires at three points to track healthcare use, out-of-pocket costs, and quality of life. The results will help decide whether pausing milk feeds during blood transfusions is worth it for families and the NHS.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Chelsea & Westminster Hospital
RECRUITINGLondon, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Imperial College Healthcare NHS Trust (St Mary's Hospital, Paddington)
RECRUITINGLondon, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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John Radcliffe Hospital
RECRUITINGOxford, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Liverpool Women's Hospital
RECRUITINGLiverpool, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Norfolk and Norwich University Hospital
RECRUITINGNorwich, Norfolk, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Queen Alexandra Hospital
RECRUITINGPortsmouth, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Coventry
RECRUITINGCoventry, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help shape better support for families of premature babies and guide whether to pause or continue milk feeds during blood transfusions.
What could go wrong
This is an observational study, not a treatment trial. It will not directly test a new therapy, so it cannot prove what works best for babies.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.