New study aims to predict sudden death in severe epilepsy
NCT ID NCT05472389
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looks at how repeated seizures affect breathing and heart function in people with Dravet syndrome, a severe form of epilepsy. Researchers will monitor 92 children and adults for 24-48 hours using video, brain wave, heart, and breathing recordings. The goal is to find clues that could help prevent sudden unexpected death in epilepsy (SUDEP).
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could identify early warning signs for sudden unexpected death in epilepsy (SUDEP), paving the way for future preventive treatments.
What could go wrong
This is an observational study, not a treatment trial. It may not directly change patient care, and results might not apply to all epilepsy types.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for EPILEPSY are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Department of Paediatrics and Paediatric Neurology, Antwerp University Hospital
Edegem, 2650, Belgium
-
HFME Hospices Civils de Lyon
Bron, Rhone, 69500, France
-
Hôpital Neurologique Pierre Wertheimer Hospices Civils de Lyon
Bron, Rhone, 69500, France
-
Klinik und Poliklinik für Epileptologie, Universitätsklinikum
Bonn, 53127, Germany