New study aims to predict sudden death in severe epilepsy

NCT ID NCT05472389

Ongoing Knowledge-focused Sponsor: Hospices Civils de Lyon Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at how repeated seizures affect breathing and heart function in people with Dravet syndrome, a severe form of epilepsy. Researchers will monitor 92 children and adults for 24-48 hours using video, brain wave, heart, and breathing recordings. The goal is to find clues that could help prevent sudden unexpected death in epilepsy (SUDEP).

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could identify early warning signs for sudden unexpected death in epilepsy (SUDEP), paving the way for future preventive treatments.
What could go wrong: This is an observational study, not a treatment trial. It may not directly change patient care, and results might not apply to all epilepsy types.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Dravet syndrome Epilepsies, Myoclonic epilepsy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DRAVET SYNDROME EPILEPSY

Contacts and locations

Locations

Department of Paediatrics and Paediatric Neurology, Antwerp University Hospital

Edegem, 2650, Belgium
HFME Hospices Civils de Lyon

Bron, Rhone, 69500, France
Hôpital Neurologique Pierre Wertheimer Hospices Civils de Lyon

Bron, Rhone, 69500, France
Klinik und Poliklinik für Epileptologie, Universitätsklinikum

Bonn, 53127, Germany

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