Kids share their blood disorder stories in new study
NCT ID NCT04600609
First seen Feb 05, 2026 · Last updated May 15, 2026 · Updated 11 times
Summary
This study talked to children aged 12 to 21 with bleeding or clotting disorders to understand how their condition affects their daily life, emotions, and future plans. Researchers used interviews and questionnaires to learn about quality of life, confidence in managing their disorder, and their experience with medical care. The goal was to gather insights to improve support for young patients.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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The University of Texas Southwestern Medical Center
Dallas, Texas, 75235, United States
Conditions
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