Teens with blood disorders share their stories in new study

NCT ID NCT04600609

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study interviewed 15 children aged 12 to 21 who have bleeding or clotting disorders. Researchers asked about their quality of life, confidence in managing their condition, and how they view the care they receive. The goal is to better understand the real-life challenges these young patients face.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • The University of Texas Southwestern Medical Center

    Dallas, Texas, 75235, United States

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