NEUROFIBROMATOSIS TYPE 1
Clinical trials for NEUROFIBROMATOSIS TYPE 1 explained in plain language.
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New drug trial aims to shrink painful nerve tumors
Disease control Recruiting nowThis study is testing an investigational drug called HLX-1502 in people aged 12 and older who have neurofibromatosis type 1 (NF1) with painful or growing nerve tumors called plexiform neurofibromas. The main goal is to see if the drug can safely shrink these tumors by at least 20…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Phase: PHASE2 • Sponsor: Healx Limited • Aim: Disease control
Last updated Apr 01, 2026 14:42 UTC
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Simple blood test could spot dangerous nerve tumors sooner
Diagnosis Recruiting nowThis study is testing whether a 'liquid biopsy'—a simple blood test—can detect a dangerous type of nerve tumor (MPNST) earlier than current methods in adults with Neurofibromatosis Type 1 (NF1). Researchers will follow 1,000 adults with NF1 for five years, collecting blood sample…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Sponsor: David Miller • Aim: Diagnosis
Last updated Mar 31, 2026 12:11 UTC
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Patients help design tools to measure how NF1 tumors affect appearance
Knowledge-focused Recruiting nowThis study aims to create better questionnaires to understand how visible tumors affect the appearance and daily life of people with Neurofibromatosis Type 1 (NF1). Researchers are asking 110 patients and caregivers to review and discuss draft questionnaires in focus groups. The …
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Mar 31, 2026 12:12 UTC
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AI eyes scan kids for hidden tumor clues
Knowledge-focused Recruiting nowThis study is testing a new method to find very early signs of tumors in children with Neurofibromatosis Type 1 (NF1). Researchers are using special whole-body MRI scans paired with artificial intelligence (AI) software. The goal is to see if this AI system can reliably spot smal…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Phase: NA • Sponsor: Nicole Baca • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC
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Landmark study seeks to measure the hidden toll of rare skin conditions
Knowledge-focused Recruiting nowThis study aims to measure the full burden—including physical, emotional, social, and financial impacts—of living with nine rare skin diseases. Researchers will enroll 900 patients and their families across France to complete detailed surveys about their daily lives and healthcar…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:31 UTC
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Scientists hunt for hidden genetic causes of childhood cancers in families
Knowledge-focused Recruiting nowThis study aims to discover new genes that cause cancer to run in families, especially those affecting children. Researchers will collect health information, blood, and sometimes leftover tumor samples from families where multiple members have had cancer. The goal is to build a l…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Sponsor: St. Jude Children's Research Hospital • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:30 UTC
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Egypt's first major NF1 registry launches to map rare genetic disorder
Knowledge-focused Recruiting nowThis study aims to understand how Neurofibromatosis Type 1 (NF1) affects people in Egypt by collecting health information from 200 patients diagnosed between 2010 and 2023. Researchers will track how the disease progresses over time, what treatments patients receive, and how comm…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Sponsor: AstraZeneca • Aim: Knowledge-focused
Last updated Mar 17, 2026 13:09 UTC
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Eye test could reveal hidden pain in nerve disorder
Knowledge-focused Recruiting nowThis study is testing a new device to see if it can objectively measure pain and other sensory problems in people with neurofibromatosis type 1 (NF1). Researchers will use a camera to record changes in the pupil of the eye while a small, non-painful electrical signal is applied t…
Matched conditions: NEUROFIBROMATOSIS TYPE 1
Phase: NA • Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Mar 10, 2026 12:52 UTC