Egypt launches major study to track rare genetic disorder NF1
NCT ID NCT07221331
First seen Jun 27, 2026 · Last updated Aug 13, 2026 · Updated 2 times
Summary
This study is a disease registry that will collect information from 200 people in Egypt who have neurofibromatosis type 1 (NF1), a genetic condition that causes tumors to grow on nerves. The goal is to understand how the disease progresses over time, what treatments patients receive, and how it affects their daily lives. No new treatments are being tested; instead, researchers will review medical records to learn more about NF1 in the Egyptian population.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Research Site
RECRUITINGAl Mansurah, Egypt
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Research Site
RECRUITINGAlexandria, Egypt
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Research Site
RECRUITINGAswān, Egypt
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Research Site
NOT_YET_RECRUITINGAsyut, Egypt
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Research Site
RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGSohag, Egypt
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Research Site
RECRUITINGTanta, Egypt
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Research Site
NOT_YET_RECRUITINGZagazig, Egypt
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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- Could a cholesterol drug boost reading skills in kids with NF1?
- Antioxidant drug shows promise for kids with NF1
- Can a simple walk test spot motor trouble in kids with NF1?
- New drug aims to help kids with rare genetic short stature grow taller
- New study tracks Long-Term safety of NF1 drug in kids