New study tracks Long-Term safety of NF1 drug in kids
NCT ID NCT05388370
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study monitors the safety of selumetinib in children aged 3 to 18 with neurofibromatosis type 1 and symptomatic, inoperable plexiform neurofibromas. Researchers will track potential side effects on the heart, bones, muscles, liver, eyes, and puberty. The goal is to better understand the drug's risks in real-world use across Europe and Israel.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Vienna, Austria
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Amiens, France
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Angers, France
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Bordeaux, France
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Lille, France
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Lyon, France
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Marseille, France
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Paris, France
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Rennes, France
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Strasbourg, France
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Toulouse, France
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Tours, France
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Vandœuvre-lès-Nancy, France
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Villejuif, France
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Dresden, Germany
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Duisburg, Germany
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Hamburg, Germany
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Hanover, Germany
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München, Germany
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Tübingen, Germany
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Petah Tikva, Israel
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Ramat Gan, Israel
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Tel Aviv, Israel
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Florence, Italy
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Genova, Italy
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Milan, Italy
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Padova, Italy
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Pavia, Italy
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Roma, Italy
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Torino, Italy
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Trieste, Italy
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Rotterdam, Netherlands
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Lisbon, Portugal
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Porto, Portugal
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Barcelona, Spain
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Madrid, Spain
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Málaga, Spain
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Santiago de Compostela, Spain
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Seville, Spain
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Basel, Switzerland
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Bern, Switzerland
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Lausanne, Switzerland
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Sankt Gallen, Switzerland
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London, United Kingdom
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Manchester, United Kingdom
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Newcastle upon Tyne, United Kingdom