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New study aims to map neurofibromatosis in russian adults

NCT ID NCT07088991

Recruiting now Knowledge-focused Sponsor: AstraZeneca Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jul 21, 2026 · Updated 4 times

Summary

This study collects information from 200 adults in Russia who have neurofibromatosis type 1 (NF1) with plexiform neurofibromas. Researchers will look at patients' age, symptoms, and medical history to better understand the disease. No new treatments are being tested; the goal is to gather data for future research.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could help doctors better understand neurofibromatosis in adults and improve future care.
What could go wrong
This is an observational study, not a treatment trial. It will not directly help participants and may not lead to new therapies.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

neurofibromatosis neurofibromatosis type 1 plexiform neurofibroma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

NEUROFIBROMATOSIS

Contacts and locations

Locations

  • Research Site

    RECRUITING

    Arkhangelsk, Russia

  • Research Site

    RECRUITING

    Chelyabinsk, Russia

  • Research Site

    RECRUITING

    Grozny, Russia

  • Research Site

    RECRUITING

    Krasnoyarsk, Russia

  • Research Site

    RECRUITING

    Kurgan, Russia

  • Research Site

    RECRUITING

    Moscow, Russia

  • Research Site

    RECRUITING

    Nizhny Novgorod, Russia

  • Research Site

    RECRUITING

    Novosibirsk, Russia

  • Research Site

    RECRUITING

    Orenburg, Russia

  • Research Site

    RECRUITING

    Perm, Russia

  • Research Site

    RECRUITING

    Rostov-on-Don, Russia

  • Research Site

    RECRUITING

    Saint Petersburg, Russia

  • Research Site

    RECRUITING

    Samara, Russia

  • Research Site

    RECRUITING

    Tomsk, Russia

  • Research Site

    RECRUITING

    Ufa, Russia

  • Research Site

    RECRUITING

    Yekaterinburg, Russia

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