New study aims to map neurofibromatosis in russian adults
NCT ID NCT07088991
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This study collects information from 200 adults in Russia who have neurofibromatosis type 1 (NF1) with plexiform neurofibromas. Researchers will look at patients' age, symptoms, and medical history to better understand the disease. No new treatments are being tested; the goal is to gather data for future research.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help doctors better understand neurofibromatosis in adults and improve future care.
What could go wrong
This is an observational study, not a treatment trial. It will not directly help participants and may not lead to new therapies.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGArkhangelsk, Russia
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Research Site
RECRUITINGChelyabinsk, Russia
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Research Site
RECRUITINGKrasnoyarsk, Russia
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Research Site
RECRUITINGKurgan, Russia
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Research Site
RECRUITINGMoscow, Russia
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Research Site
RECRUITINGNizhny Novgorod, Russia
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Research Site
RECRUITINGNovosibirsk, Russia
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Research Site
RECRUITINGOrenburg, Russia
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Research Site
RECRUITINGPerm, Russia
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Research Site
RECRUITINGSaint Petersburg, Russia
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Research Site
RECRUITINGSamara, Russia
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Research Site
RECRUITINGTomsk, Russia
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Research Site
RECRUITINGUfa, Russia
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Research Site
RECRUITINGYekaterinburg, Russia