Russian NF1 Patients' health under the microscope: no treatment, just facts
NCT ID NCT07088991
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 30 times
Summary
This study aims to collect information about 200 adults in Russia who have neurofibromatosis type 1 (NF1) and related tumors called plexiform neurofibromas. Researchers will look at patients' medical records and interview them to understand their age, symptoms, and overall health. No new treatments or medications are being tested; the goal is simply to learn more about the disease in this population.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGArkhangelsk, Russia
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Research Site
RECRUITINGChelyabinsk, Russia
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Research Site
RECRUITINGKrasnoyarsk, Russia
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Research Site
RECRUITINGKurgan, Russia
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Research Site
RECRUITINGMoscow, Russia
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Research Site
RECRUITINGNizhny Novgorod, Russia
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Research Site
RECRUITINGNovosibirsk, Russia
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Research Site
RECRUITINGOrenburg, Russia
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Research Site
RECRUITINGSaint-Peretsburg, Russia
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Research Site
RECRUITINGSamara, Russia
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Research Site
RECRUITINGTomsk, Russia
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Research Site
RECRUITINGUfa, Russia
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Research Site
RECRUITINGYekaterinburg, Russia
Conditions
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