MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Snap & scribble: new study tests creative therapy for rare disease
Symptom relief CompletedThis small study looked at whether taking photos and writing about their experiences can help people with Marfan syndrome cope with their condition. Eight participants tried these creative activities and shared their thoughts in interviews. The goal was to see if these methods co…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: IRCCS Policlinico S. Donato • Aim: Symptom relief
Last updated May 17, 2026 02:39 UTC
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Personalized exercise boosts fitness in marfan syndrome patients
Symptom relief CompletedThis study tested a personalized exercise program for 28 children and young adults (under 25) with Marfan syndrome, a rare genetic condition affecting the heart, eyes, and bones. The program aimed to improve endurance, muscle strength, and quality of life. Participants completed …
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: University Hospital, Toulouse • Aim: Symptom relief
Last updated May 14, 2026 12:06 UTC
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Marfan study reveals hidden spine symptoms
Knowledge-focused CompletedThis study looked at 90 adults with Marfan syndrome to see if those with a spine condition called dural ectasia have more pain and activity limits than those without it. Researchers compared symptoms like headaches and back pain, and used questionnaires to measure quality of life…
Matched conditions: MARFAN SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 17, 2026 02:42 UTC
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Gene-Face link in rare syndromes revealed by orthodontic study
Knowledge-focused CompletedThis study looked at 39 children aged 4 to 18 with Marfan or Loeys-Dietz syndromes to see if their specific gene changes were linked to differences in face and jaw shape. Researchers used dental X-rays to measure bone positions and compared groups based on their genetic variants.…
Matched conditions: MARFAN SYNDROME
Sponsor: Andrea Scribante • Aim: Knowledge-focused
Last updated May 15, 2026 11:53 UTC
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Marfan Patients' Well-Being after heart surgery under the microscope
Knowledge-focused CompletedThis study looked at how heart surgery impacts the mental health, well-being, and quality of life of adults with Marfan syndrome. Researchers asked 28 participants to fill out questionnaires before surgery and at several points after. The goal is to better understand these effect…
Matched conditions: MARFAN SYNDROME
Sponsor: Barts & The London NHS Trust • Aim: Knowledge-focused
Last updated May 13, 2026 16:01 UTC