MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Exercise program shows promise for marfan syndrome patients
Symptom relief CompletedThis study tested a personalized exercise program for 28 children and young adults with Marfan syndrome, a rare genetic condition affecting the heart, eyes, and bones. The program aimed to improve endurance, muscle strength, and quality of life. Researchers measured changes in fi…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: University Hospital, Toulouse • Aim: Symptom relief
Last updated Jun 27, 2026 09:03 UTC
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Snap and scribble: a new way to cope with marfan syndrome?
Symptom relief CompletedThis study looked at whether taking pictures and writing about them can help people with Marfan syndrome express their feelings and improve their sense of well-being. Eight adults with Marfan syndrome took part in photography and writing activities, then shared their experiences …
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: IRCCS Policlinico S. Donato • Aim: Symptom relief
Last updated Jun 26, 2026 15:32 UTC
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Marfan Patients' hidden struggles after heart surgery revealed
Knowledge-focused CompletedThis study looked at how heart surgery impacts the mental health, well-being, and quality of life of adults with Marfan Syndrome. Researchers asked 28 patients to fill out questionnaires about depression, fatigue, pain, and self-esteem before surgery and at several points after. …
Matched conditions: MARFAN SYNDROME
Sponsor: Barts & The London NHS Trust • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:07 UTC
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Gene-Face link in rare syndromes revealed
Knowledge-focused CompletedThis study examined 39 children aged 4 to 18 with Marfan or Loeys-Dietz syndromes to see how their genetic differences relate to facial and jaw structure. Researchers used X-rays to measure bone relationships in the face and compared groups based on their specific gene changes. T…
Matched conditions: MARFAN SYNDROME
Sponsor: Andrea Scribante • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:13 UTC
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Marfan study sheds light on spinal issues linked to dural ectasia
Knowledge-focused CompletedThis study looked at 90 adults with Marfan syndrome to compare spinal symptoms and daily limitations between those who have dural ectasia (a widening of the spinal sac) and those who do not. Researchers used questionnaires to measure pain, activity limits, and quality of life. Th…
Matched conditions: MARFAN SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Jun 26, 2026 16:11 UTC