MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Can a camera and a pen ease the burden of a rare disease?
Symptom relief CompletedThis small study explored whether adding photography and journaling activities to regular care could help people with Marfan syndrome. Eight participants tried these creative activities to see if they improved their emotional well-being and coping. The main goal was to see if thi…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: IRCCS Policlinico S. Donato • Aim: Symptom relief
Last updated Mar 31, 2026 12:12 UTC
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Can exercise ease the strain of a rare genetic disorder?
Symptom relief CompletedThis study tested if a personalized exercise program could help children and young adults with Marfan syndrome. Researchers wanted to see if the training could improve muscle strength, physical endurance, and overall quality of life for the 28 participants. The goal was to find a…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: University Hospital, Toulouse • Aim: Symptom relief
Last updated Mar 10, 2026 12:53 UTC
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Researchers map the hidden pain of marfan syndrome
Knowledge-focused CompletedThis study aimed to better understand how a specific spinal condition called dural ectasia affects people with Marfan syndrome. Researchers compared 90 adult patients, some with the condition and some without, to see how often they experienced back pain, headaches, and other symp…
Matched conditions: MARFAN SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Apr 01, 2026 14:42 UTC
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Scientists map how gene flaws shape young faces in rare disorders
Knowledge-focused CompletedThis completed study aimed to understand how different genetic changes affect facial bone development in children with Marfan or Loeys-Dietz syndromes. Researchers analyzed X-rays from 39 children and teens with these conditions, comparing their facial structures to each other an…
Matched conditions: MARFAN SYNDROME
Sponsor: Andrea Scribante • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC
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Study probes hidden mental toll of marfan heart surgery
Knowledge-focused CompletedThis study aimed to understand how heart surgery affects the mental health and daily life of adults with Marfan syndrome. Researchers followed 28 patients from three UK hospitals, asking them to complete surveys about their mood, energy, and quality of life before and for a year …
Matched conditions: MARFAN SYNDROME
Sponsor: Barts & The London NHS Trust • Aim: Knowledge-focused
Last updated Mar 23, 2026 15:17 UTC