MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Custom stent grafts offer new hope for High-Risk aneurysm patients
Disease control Recruiting nowThis study is testing whether custom-made or physician-modified stent grafts can safely repair complex aortic aneurysms in people who cannot use standard devices or undergo open surgery. The grafts are tailored to each patient's anatomy, with small holes to keep blood flowing to …
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: Andres Schanzer • Aim: Disease control
Last updated Jun 27, 2026 07:55 UTC
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Exercise program aims to boost endurance in kids with marfan syndrome
Symptom relief Recruiting nowThis study tests whether a 6-month adapted physical activity program can improve endurance in children and teenagers with Marfan syndrome. About 30 participants aged 7 to 17 will take part. The program focuses on safe, tailored exercises to help them be more active without puttin…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: University Hospital, Toulouse • Aim: Symptom relief
Last updated Jun 27, 2026 09:09 UTC
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Brazil launches massive heart gene hunt to unlock hereditary mysteries
Knowledge-focused Recruiting nowThis study is building a registry of 1,211 people in Brazil who have inherited heart conditions like cardiomyopathy, arrhythmias, and Marfan syndrome. Researchers will collect DNA samples and medical information to discover which genes are most commonly affected and how often the…
Matched conditions: MARFAN SYNDROME
Sponsor: Hospital do Coracao • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:30 UTC
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Marfan mystery: scientists launch biobank to predict disease progression
Knowledge-focused Recruiting nowThis study aims to create a collection of blood and urine samples from 300 people with Marfan syndrome or related conditions. Researchers will use these samples to study how the disease works and find clues that might predict how it will progress. Participants provide extra sampl…
Matched conditions: MARFAN SYNDROME
Sponsor: University Hospital, Toulouse • Aim: Knowledge-focused
Last updated Jun 27, 2026 11:03 UTC
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Heart valve noise: does Pre-Surgery info help patients cope?
Knowledge-focused Recruiting nowThis study looks at people with a mechanical heart valve who hear a clicking noise from it. Researchers want to know if remembering information given before surgery about this noise affects their quality of life afterward. About 180 participants will answer questionnaires over th…
Matched conditions: MARFAN SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:06 UTC