MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Could a High-Fat diet prevent aortic surgery in marfan patients?
Disease control Not yet recruitingThis pilot study tests whether a carefully supervised ketogenic diet can help people with Marfan syndrome who have a chronic aortic dissection avoid surgery for one year. Fifteen adults aged 18-50 will follow the diet with guidance from a dietitian, measure their blood ketones at…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: Washington University School of Medicine • Aim: Disease control
Last updated Jun 27, 2026 12:01 UTC
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What keeps marfan patients from exercising? new study aims to find out
Knowledge-focused Not yet recruitingThis study will look at 118 adults with Marfan syndrome to understand why they may not be physically active. Researchers will measure factors like fear of movement, fatigue, pain, and heart health. The goal is to identify what predicts low activity levels, which could help improv…
Matched conditions: MARFAN SYNDROME
Sponsor: University of Oviedo • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:06 UTC
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Researchers to examine bone density in rare genetic disorders
Knowledge-focused Not yet recruitingThis study will review medical records of 150 people with Marfan syndrome or Ehlers-Danlos syndrome to understand bone mineralization and fracture risk. Researchers will look at past bone density scans and health data to see how bone health changes over time. The goal is to learn…
Matched conditions: MARFAN SYNDROME
Sponsor: IRCCS Policlinico S. Donato • Aim: Knowledge-focused
Last updated Jun 26, 2026 15:44 UTC