MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Can a keto diet save marfan patients from aortic surgery?
Disease control Not yet recruitingThis small pilot study is testing whether a carefully supervised ketogenic diet can help stabilize the aorta in people with Marfan syndrome who have a chronic aortic dissection. Fifteen participants will follow the diet for a year while researchers track their blood ketone levels…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: Washington University School of Medicine • Aim: Disease control
Last updated Mar 31, 2026 12:10 UTC
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Researchers track bone changes in connective tissue disorders
Knowledge-focused Not yet recruitingThis study aims to understand how bone density changes over time in people with Marfan syndrome or Ehlers-Danlos syndrome. Researchers will analyze existing medical records and bone scan results from 150 patients collected between 2019 and 2022. The goal is to identify patterns i…
Matched conditions: MARFAN SYNDROME
Sponsor: IRCCS Policlinico S. Donato • Aim: Knowledge-focused
Last updated Apr 01, 2026 14:41 UTC
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Study probes why people with marfan syndrome may avoid exercise
Knowledge-focused Not yet recruitingThis study aims to understand how much physical activity adults with Marfan syndrome get and what factors might hold them back. Researchers will survey about 118 adults to see if fear of movement, pain, fatigue, or heart health history are linked to lower activity levels. The goa…
Matched conditions: MARFAN SYNDROME
Sponsor: University of Oviedo • Aim: Knowledge-focused
Last updated Mar 31, 2026 12:11 UTC