What keeps marfan patients from exercising? new study aims to find out

NCT ID NCT07419386

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study will look at 118 adults with Marfan syndrome to understand why they may not be physically active. Researchers will measure factors like fear of movement, fatigue, pain, and heart health. The goal is to identify what predicts low activity levels, which could help improve future exercise advice for this group.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could help doctors understand why many people with Marfan syndrome avoid physical activity, leading to better exercise recommendations.
What could go wrong
This is an observational study, not a treatment trial, so it won't directly improve health. Results may not apply to all patients due to the small sample size and self-reported data.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Fatigue Kinesiophobia Marfan syndrome Motor Activity Pain

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Universidad de Oviedo

    Oviedo, Principality of Asturias, 33006, Spain

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