Exercise program shows promise for marfan syndrome patients

NCT ID NCT03236571

Completed Symptom relief Sponsor: University Hospital, Toulouse Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study tested a personalized exercise program for 28 children and young adults with Marfan syndrome, a rare genetic condition affecting the heart, eyes, and bones. The program aimed to improve endurance, muscle strength, and quality of life. Researchers measured changes in fitness and fatigue before and after the program.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: personalized exercise rehabilitation program
What this could lead to: If successful, this could point toward a safe way to improve fitness and daily life for young people with Marfan syndrome.
What could go wrong: This is a small, early study with only 28 participants and no control group, so results may not apply broadly. Exercise risks for heart conditions must be carefully managed.

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Conditions

The condition(s) this trial relates to.

Marfan syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

MARFAN SYNDROME

Contacts and locations

Locations

CHU de Toulouse

Toulouse, Midi-Pyrénées, 31059, France

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