Researchers dig into bone strength in rare connective tissue disorders

NCT ID NCT07169669

First seen Nov 01, 2025 · Last updated May 18, 2026 · Updated 26 times

Summary

This study aims to understand bone mineralization and fracture risk in people with Marfan or Ehlers-Danlos syndrome. Researchers will review existing medical records and bone density scans from 150 patients. The goal is to identify patterns of bone loss and osteoporosis over time, without any new treatments or procedures.

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Contacts and locations

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