Marfan study sheds light on spinal issues linked to dural ectasia

NCT ID NCT05123339

First seen Jun 24, 2026 · Last updated Jun 26, 2026 · Updated 2 times

Summary

This study looked at 90 adults with Marfan syndrome to compare spinal symptoms and daily limitations between those who have dural ectasia (a widening of the spinal sac) and those who do not. Researchers used questionnaires to measure pain, activity limits, and quality of life. The goal was to better understand how dural ectasia affects people with Marfan syndrome.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study could help doctors better identify and manage spinal symptoms in Marfan patients with dural ectasia.

What could go wrong

This is a small, completed observational study, so it cannot prove cause and effect or lead directly to new treatments.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Arachnodactyly intracranial hypotension Low Back Pain Marfan syndrome Signs and Symptoms

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • CNMR Bichat

    Paris, IDF, 75018, France