CAREGIVER BURDEN

This study compares two approaches to prevent delirium in older adults during a hospital stay. One is standard hospital care (HELP), and the other adds daily support from family members (FAM-HELP). Researchers will track 1,900 patients aged 70 and older to see if family involveme…

This study tests a program called SNAP that helps head and neck cancer survivors and their caregivers after radiation treatment. The program includes a needs assessment, a personalized care plan, and a mobile app. Researchers want to see if it reduces symptoms for survivors and e…

This study tests a new psychoeducation program led by an advanced practice nurse to reduce the burden on family caregivers of young adults (ages 18-35) who have had a first psychotic episode. The program includes individual and group sessions to support caregivers. Researchers wi…

This study tests a type of talk therapy called Meaning-Centered Psychotherapy for Caregivers (MCP-C) to see if it helps cancer caregivers feel more purpose and less distress. About 200 caregivers of people with advanced cancer will be randomly assigned to MCP-C or standard suppor…

This study looks at how stress and sleep affect the mood and brain health of people caring for a loved one with dementia. About 120 caregivers aged 55 and older will receive one of two types of talk therapy. Researchers will track their mood, activity, and brain scans to see whic…

This study tests whether a 5-week group therapy program called Acceptance and Commitment Therapy (ACT) can reduce stress and improve quality of life for family caregivers of stroke survivors. About 30 caregivers aged 40 or older who provide most of the care for a stroke survivor …

This study tests a web-based program called CARE-CITE that teaches family caregivers how to better support stroke survivors with arm exercises at home. The program includes virtual home visits and phone check-ins over four weeks. Researchers will measure improvements in arm funct…

This study tests whether low or moderate doses of LSD can reduce anxiety, pain, and depression in people with advanced or terminal illnesses. Sixty participants will receive either two moderate doses or two very low (placebo-like) doses of LSD in a double-blind setup. The goal is…

This study tests whether Jing Si Herbal Tea, taken twice daily, can improve quality of life and sleep for people with dementia and their caregivers. Researchers will first test the tea's feasibility in 100 people with dementia, then conduct a larger placebo-controlled trial with …

This study tests a 16-week partner exercise program called BUDPA for people with mild dementia and their family caregivers. The program involves group workouts and at-home practice, aiming to improve thinking, mood, and the relationship between the pair. Researchers will track 23…

This study is testing a mobile app called CarePair that helps family caregivers of people with dementia find services and support. About 80 caregivers will use the app for six weeks to see if it is easy to use and helps reduce stress and depression. The goal is to see if the app …

This study tests a digital program called TPA4You for older adults (50+) who care for a family member with heart failure. The program uses a Fitbit, video coaching, and text messages to encourage physical activity. The goal is to see if it's feasible and helps improve caregivers'…

This study tests whether a telephone-based counseling program can help patients with advanced gastrointestinal cancer and their family caregivers feel better. The program teaches strategies to manage stress and symptoms, and is compared to a standard education and support program…

This pilot study tests a brief psychotherapy program for young adults (ages 25-39) with cancer and their caregiving partners. The therapy uses cognitive-behavioral and couples therapy techniques to improve coping and maintain the relationship. The study will enroll 20 couples to …

This study tests a talk therapy called EASE for parents whose child has cancer. The goal is to see if it reduces traumatic stress symptoms over six months. About 306 parents will take part, answering questionnaires at several points. The therapy is added to usual care and compare…

This study tests whether a mobile app called Brain CareNotes can reduce stress for unpaid caregivers of people with Alzheimer's or related dementias. The app offers coaching and tips for managing difficult behaviors like agitation or wandering. Over 12 months, 184 caregivers will…

This study tests a video-based program called STELLA-FTD that helps family members caring for a loved one with frontotemporal dementia (FTD). The program teaches caregivers how to manage difficult behaviors and connect with community resources. Researchers will enroll 640 caregiv…

This study tests an 8-week online program called STELLA-R that teaches dementia caregivers a simple ABC method to understand and respond to upsetting behaviors. About 238 caregivers in Oregon, Washington, and Idaho will try the program and report how it affects their stress and r…

This pilot study offers free legal services to caregivers and patients dealing with advanced colorectal cancer. The goal is to see if early legal support can reduce financial and emotional stress. Twenty patient-caregiver pairs will receive personalized legal help from a nonprofi…

This study is testing a chatbot called DAPHNE to see if it helps caregivers of children find resources for needs like food, housing, or healthcare. About 70 caregivers and their doctors will use the chatbot or standard care for 6 months. Researchers will check if the chatbot is e…

This study compares swallowing function in older adults with and without Alzheimer's disease. Researchers will also survey caregivers to understand the burden of swallowing issues. Participants will undergo tests of swallowing, coughing, and muscle strength. The goal is to learn …

This study tests a 4-week training program for assisted living staff (nurses, administrators, and coordinators) to improve palliative care for residents with dementia. The goal is to increase advance care planning discussions and reduce caregiver burnout. About 792 participants f…

This study tests a training program called the Pain Identification and Communication Toolkit (PICT) for family caregivers of people with Alzheimer's disease or related dementias. The program teaches caregivers how to spot signs of pain and talk about it with doctors. Researchers …