SPINA BIFIDA

This study is testing a coordinated healthcare program designed to help adults with childhood-onset disabilities like cerebral palsy and spina bifida. The program aims to provide better lifelong care after patients transition from pediatric services, where care gaps often occur. …

This study is testing if new 3D scanning and printing technology can make custom ankle braces as well as the old, slower plaster-cast method. Researchers will compare how well the braces work, how satisfied people are with them, and the cost for each type. The goal is to see if d…

This study is testing whether a patch made from a newborn's own umbilical cord tissue can improve the surgical repair of spina bifida. Researchers will use the tissue to close the spinal opening in 15 newborns, aiming to create a better spinal canal and reduce complications. They…

This study is testing whether a special mobile app system can help people with chronic conditions like spinal cord injury or cerebral palsy better manage their daily self-care. The app sends reminders for tasks like medication, bladder routines, and skin checks, and lets users re…

This study is testing an online group support program designed to help adults with spina bifida. Over 10 weekly video sessions, participants will work on improving their self-esteem, social skills, and overall psychological well-being. The goal is to see if this accessible, remot…

This study is testing if a gentle electrical stimulation of a nerve near the ankle can help reduce urinary leakage in children with spina bifida. Kids aged 8-18 will learn to use the device at a clinic and then do the 30-minute treatments at home for 6 weeks. The goal is to see i…

This study is testing whether a robotic exoskeleton worn on the legs can improve walking ability in children with movement disorders like cerebral palsy or spina bifida. Children aged 3 to 17 will use the device at home for 12 weeks to see if it helps their knee movement and walk…

This study aims to understand how a non-invasive electrical stimulation device placed on the skin over the spine affects leg muscle weakness, stiffness, and coordination in children and young adults with spina bifida. Researchers will test the device on 30 participants to map how…

This study aims to see if certain substances found in urine can predict which spina bifida patients are at risk for kidney damage. Researchers will follow 50 patients for one year, measuring these urine markers during their regular check-ups. The goal is to find a simple, non-inv…