Massive ALS biobank aims to unlock secrets of the disease
NCT ID NCT05137665
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is creating a large collection of blood, spinal fluid, and urine samples from 800 ALS patients and 200 healthy volunteers. Researchers will also track clinical changes and at-home measures over time. The goal is to provide a valuable resource for scientists worldwide to study ALS and develop future treatments.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study will provide researchers with a rich set of samples and data to better understand ALS and develop new treatments.
What could go wrong
This is an observational study, not a treatment trial. It will not directly benefit participants, and the samples may not lead to immediate breakthroughs.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Locations
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Barrow Neurological Institute
RECRUITINGPhoenix, Arizona, 85013, United States
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Baylor College of Medicine
RECRUITINGHouston, Texas, 77030, United States
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CHALS-CCT UPR MScience
RECRUITINGSan Juan, 00935, Puerto Rico
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Columbia University
RECRUITINGNew York, New York, 10032, United States
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Georgetown University
RECRUITINGGeorgetown, District of Columbia, 20007, United States
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Instituto Roosevelt
RECRUITINGBogotá, Colombia
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGJacksonville, Florida, 32224, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
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University of California San Diego
RECRUITINGSan Diego, California, 92121, United States
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University of Washington
RECRUITINGSeattle, Washington, 98195, United States
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Washington University
RECRUITINGSt Louis, Missouri, 63110, United States
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