Massive ALS biobank aims to unlock secrets of the disease

NCT ID NCT05137665

Recruiting now Knowledge-focused Sponsor: Target ALS Foundation, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is creating a large collection of blood, spinal fluid, and urine samples from 800 ALS patients and 200 healthy volunteers. Researchers will also track clinical changes and at-home measures over time. The goal is to provide a valuable resource for scientists worldwide to study ALS and develop future treatments.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study will provide researchers with a rich set of samples and data to better understand ALS and develop new treatments.
What could go wrong: This is an observational study, not a treatment trial. It will not directly benefit participants, and the samples may not lead to immediate breakthroughs.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for AMYOTROPHIC LATERAL SCLEROSIS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis motor neuron disorder movement disorder neurodegenerative disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AMYOTROPHIC LATERAL SCLEROSIS DEGENERATIVE DISORDER MOTOR NEURON DISEASE MOVEMENT DISORDERS

Contacts and locations

Locations

Barrow Neurological Institute
RECRUITING

Phoenix, Arizona, 85013, United States
Baylor College of Medicine
RECRUITING

Houston, Texas, 77030, United States
CHALS-CCT UPR MScience
RECRUITING

San Juan, 00935, Puerto Rico
Columbia University
RECRUITING

New York, New York, 10032, United States
Georgetown University
RECRUITING

Georgetown, District of Columbia, 20007, United States
Instituto Roosevelt
RECRUITING

Bogotá, Colombia
Massachusetts General Hospital
RECRUITING

Boston, Massachusetts, 02114, United States
Mayo Clinic
RECRUITING

Jacksonville, Florida, 32224, United States
Northwestern University
RECRUITING

Chicago, Illinois, 60611, United States
University of California San Diego
RECRUITING

San Diego, California, 92121, United States
University of Washington
RECRUITING

Seattle, Washington, 98195, United States
Washington University
RECRUITING

St Louis, Missouri, 63110, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.