Massive ALS biobank aims to unlock disease secrets
NCT ID NCT05137665
First seen Nov 21, 2025 · Last updated May 10, 2026 · Updated 26 times
Summary
This study is creating a large collection of biological samples—like blood, spinal fluid, and urine—from 800 people with ALS and 200 healthy volunteers. Researchers will also track participants' health over time using clinic visits and at-home tests. The goal is to provide this data to scientists worldwide to help them better understand ALS and develop new treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Barrow Neurological Institute
RECRUITINGPhoenix, Arizona, 85013, United States
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Baylor College of Medicine
RECRUITINGHouston, Texas, 77030, United States
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CHALS-CCT UPR MScience
RECRUITINGSan Juan, 00935, Puerto Rico
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Columbia University
RECRUITINGNew York, New York, 10032, United States
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Georgetown University
RECRUITINGGeorgetown, District of Columbia, 20007, United States
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Instituto Roosevelt
RECRUITINGBogotá, Colombia
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGJacksonville, Florida, 32224, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
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University of California San Diego
RECRUITINGSan Diego, California, 92121, United States
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University of Washington
RECRUITINGSeattle, Washington, 98195, United States
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Washington University
RECRUITINGSt Louis, Missouri, 63110, United States
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Conditions
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