No travel needed: largest Home-Based study of myotonic dystrophy launches

NCT ID NCT07505342

Recruiting now Knowledge-focused Sponsor: University of Rochester Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study aims to understand why myotonic dystrophy type 1 affects people so differently. Researchers will remotely assess muscle strength, memory, and activity in 1,000 participants, and analyze their DNA from a blood sample. All activities are done from home using a mailed toolkit and video calls.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could reveal why myotonic dystrophy affects people so differently and identify better ways to measure symptoms in daily life.
What could go wrong: This is an observational study, not a treatment trial. It will not test any therapy, and results may not lead to immediate changes in care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

myotonic dystrophy myotonic dystrophy type 1

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DM1 MYOTONIC DYSTROPHY TYPE 1 (DM1)

Contacts and locations

Locations

University of Rochester
RECRUITING

Rochester, New York, 14642, United States

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