700-Patient study seeks key clues to muscle disease
NCT ID NCT03981575
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is following 700 adults with myotonic dystrophy type 1 (DM1) over two years. Researchers are measuring walking speed, lung function, and muscle tissue changes to find reliable markers of disease progression. The goal is to improve future clinical trials by better understanding how DM1 behaves over time.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could provide the tools needed to design better treatments for myotonic dystrophy type 1.
What could go wrong
This is an observational study, not a treatment trial. It may not directly benefit participants and results depend on consistent data collection over 24 months.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Locations
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Centro Clinico NeMO
COMPLETEDMilan, Italy
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Friedrich Baur Institute, Ludwig-Maximilians-Universität München
RECRUITINGMünchen, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Houston Methodist Neurological Institute
RECRUITINGHouston, Texas, 77030, United States
Contact
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Kansas University Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
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Ohio State University
RECRUITINGColumbus, Ohio, 43210, United States
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Radboud University Medical Center
RECRUITINGNijmegen, Netherlands
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St. George's, University of London
RECRUITINGLondon, United Kingdom
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University College London
RECRUITINGLondon, United Kingdom
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University of Auckland
RECRUITINGAuckland, New Zealand
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University of California, Los Angeles
RECRUITINGLos Angeles, California, 90095, United States
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University of California, San Diego
RECRUITINGLa Jolla, California, 92703, United States
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Contact Email: •••••@•••••
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University of Colorado - Denver
RECRUITINGDenver, Colorado, 80204, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida
RECRUITINGGainesville, Florida, 32611, United States
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University of Iowa
RECRUITINGIowa City, Iowa, 52242, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Rochester
RECRUITINGRochester, New York, 14642, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Université de Sherbrooke
ACTIVE_NOT_RECRUITINGQuébec, Canada
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
Contact Email: •••••@•••••
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