700-Patient study seeks key clues to muscle disease

NCT ID NCT03981575

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is following 700 adults with myotonic dystrophy type 1 (DM1) over two years. Researchers are measuring walking speed, lung function, and muscle tissue changes to find reliable markers of disease progression. The goal is to improve future clinical trials by better understanding how DM1 behaves over time.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study could provide the tools needed to design better treatments for myotonic dystrophy type 1.

What could go wrong

This is an observational study, not a treatment trial. It may not directly benefit participants and results depend on consistent data collection over 24 months.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

myotonic dystrophy myotonic dystrophy type 1

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Centro Clinico NeMO

    COMPLETED

    Milan, Italy

  • Friedrich Baur Institute, Ludwig-Maximilians-Universität München

    RECRUITING

    München, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Houston Methodist Neurological Institute

    RECRUITING

    Houston, Texas, 77030, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Kansas University Medical Center

    RECRUITING

    Kansas City, Kansas, 66160, United States

    Contact

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

  • Ohio State University

    RECRUITING

    Columbus, Ohio, 43210, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • Radboud University Medical Center

    RECRUITING

    Nijmegen, Netherlands

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • St. George's, University of London

    RECRUITING

    London, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University College London

    RECRUITING

    London, United Kingdom

    Contact Email: •••••@•••••

    Contact

    Contact Email: •••••@•••••

  • University of Auckland

    RECRUITING

    Auckland, New Zealand

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

    Contact

  • University of California, Los Angeles

    RECRUITING

    Los Angeles, California, 90095, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of California, San Diego

    RECRUITING

    La Jolla, California, 92703, United States

    Contact

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

  • University of Colorado - Denver

    RECRUITING

    Denver, Colorado, 80204, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Florida

    RECRUITING

    Gainesville, Florida, 32611, United States

    Contact Email: •••••@•••••

    Contact

    Contact Email: •••••@•••••

  • University of Iowa

    RECRUITING

    Iowa City, Iowa, 52242, United States

    Contact

    Contact Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Rochester

    RECRUITING

    Rochester, New York, 14642, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Université de Sherbrooke

    ACTIVE_NOT_RECRUITING

    Québec, Canada

  • Virginia Commonwealth University

    RECRUITING

    Richmond, Virginia, 23298, United States

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

    Contact