Scientists hunt for biomarkers to unlock DM1 treatments
NCT ID NCT07700225
First seen Jul 13, 2026 · Last updated Jul 14, 2026 · Updated 1 time
Summary
This study follows 1,000 adults with myotonic dystrophy type 1 (DM1) over time to measure how the disease progresses. Researchers will track walking speed, hand muscle relaxation, grip strength, heart and lung function, and daily activity. The goal is to establish reliable biomarkers and clinical endpoints that can be used in future trials to test potential treatments for this progressive, multi-system disorder.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could identify reliable biomarkers and clinical endpoints that speed up development of treatments for myotonic dystrophy type 1.
- What could go wrong
- This is an observational study, not a treatment trial. It may not lead directly to new therapies, and results depend on long-term participant follow-up.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for CONGENITAL MYOTONIC DYSTROPHY are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Could virtual reality help kids with a rare muscle disease read emotions better?
- New study tracks Long-Term safety of muscle stiffness drug namuscla
- Personalized exercise program aims to boost mobility in rare muscle diseases
- 700-Patient study seeks key clues to muscle disease
- New study aims to improve monitoring of rare childhood muscle disease
- No travel needed: new study uses video calls to uncover genetic secrets of childhood muscle disease