Personalized exercise program aims to boost mobility in rare muscle diseases
NCT ID NCT06708468
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tests whether a personalized exercise program can improve balance and physical function in adults with rare neuromuscular disorders like Charcot-Marie-Tooth disease, facioscapulohumeral muscular dystrophy, and myotonic dystrophy type 1. Participants will receive a 12-day in-center exercise program followed by digital support and a second in-center session, or continue with usual care. The goal is to see if tailored strength and balance exercises lead to better mobility and quality of life.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
Personalized exercise program
What this could lead to
If successful, this could provide a tailored exercise approach to improve balance and daily function for people with rare neuromuscular disorders.
What could go wrong
This is a relatively small trial (120 participants) and focuses on symptom management, not a cure. Results may not apply to all patients or lead to lasting improvements.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NEUROMUSCULAR DISEASES (NMD) are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Haukeland University Hospital
NOT_YET_RECRUITINGBergen, 5021, Norway
Contact Email: •••••@•••••
-
Helse Møre and Romsdal HF (Molde Hospital)
NOT_YET_RECRUITINGMolde, Norway
Contact Email: •••••@•••••
-
Namsos Hospital
NOT_YET_RECRUITINGNamsos, 7803, Norway
Contact Email: •••••@•••••
-
Oslo University Hospital
RECRUITINGOslo, 0424, Norway
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
University Hospital of North Norway
RECRUITINGTromsø, 9038, Norway
Contact Email: •••••@•••••
Contact Email: •••••@•••••