Personalized exercise program aims to boost mobility in rare muscle diseases

NCT ID NCT06708468

Recruiting now Symptom relief Sponsor: Oslo University Hospital Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests whether a personalized exercise program can improve balance and physical function in adults with rare neuromuscular disorders like Charcot-Marie-Tooth disease, facioscapulohumeral muscular dystrophy, and myotonic dystrophy type 1. Participants will receive a 12-day in-center exercise program followed by digital support and a second in-center session, or continue with usual care. The goal is to see if tailored strength and balance exercises lead to better mobility and quality of life.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Personalized exercise program
What this could lead to: If successful, this could provide a tailored exercise approach to improve balance and daily function for people with rare neuromuscular disorders.
What could go wrong: This is a relatively small trial (120 participants) and focuses on symptom management, not a cure. Results may not apply to all patients or lead to lasting improvements.

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Conditions

The condition(s) this trial relates to.

Charcot-Marie-Tooth disease facioscapulohumeral muscular dystrophy myotonic dystrophy myotonic dystrophy type 1 neuromuscular disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CHARCOT MARIE TOOTH DISEASE (CMT) FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY MYOTONIC DYSTROPHY TYPE 1 (DM1) NEUROMUSCULAR DISEASES (NMD)

Contacts and locations

Locations

Haukeland University Hospital
NOT_YET_RECRUITING

Bergen, 5021, Norway
Helse Møre and Romsdal HF (Molde Hospital)
NOT_YET_RECRUITING

Molde, Norway
Namsos Hospital
NOT_YET_RECRUITING

Namsos, 7803, Norway
Oslo University Hospital
RECRUITING

Oslo, 0424, Norway
University Hospital of North Norway
RECRUITING

Tromsø, 9038, Norway

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