FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Clinical trials for FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY explained in plain language.
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Hope for FSHD: new drug enters final stage of testing
Disease control Recruiting nowThis phase 3 trial tests an experimental drug called AOC 1020 in 200 adults with facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes progressive muscle weakness. Participants receive either the drug or a placebo by IV infusion. The study measures muscle…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated Jun 27, 2026 13:00 UTC
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Experimental gene 'Silencer' therapy enters human testing for rare muscle disease
Disease control Recruiting nowThis early-phase trial is testing EPI-321, a one-time gene therapy designed to silence the faulty gene that causes facioscapulohumeral muscular dystrophy (FSHD). The study will enroll 12 adults with FSHD Type 1 to see if the treatment is safe and tolerable, and whether it shows a…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE1, PHASE2 • Sponsor: Epicrispr Biotechnologies, Inc. • Aim: Disease control
Last updated Jun 27, 2026 12:23 UTC
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Personalized exercise program aims to boost mobility in rare muscle diseases
Symptom relief Recruiting nowThis study tests whether a personalized exercise program can improve balance and physical function in adults with rare neuromuscular disorders like Charcot-Marie-Tooth disease, facioscapulohumeral muscular dystrophy, and myotonic dystrophy type 1. Participants will receive a 12-d…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: NA • Sponsor: Oslo University Hospital • Aim: Symptom relief
Last updated Jun 27, 2026 14:00 UTC
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FSHD patients unite: new registry aims to accelerate research and care
Knowledge-focused Recruiting nowThis study creates a registry for people with facioscapulohumeral muscular dystrophy (FSHD) to share their health experiences and data. Up to 5,000 participants in the U.S. will provide information through surveys to help researchers better understand the disease and develop impr…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:07 UTC
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Scientists seek simpler tests for muscular dystrophy
Knowledge-focused Recruiting nowThis study aims to find less invasive ways to measure muscle disease activity in people with muscular dystrophies. Instead of painful muscle biopsies, researchers will use blood and urine samples along with painless ultrasound and electrical tests on the arms and legs. The goal i…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: Massachusetts General Hospital • Aim: Knowledge-focused
Last updated Jun 27, 2026 07:59 UTC
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Join the fight: new registry connects muscle disease patients with scientists
Knowledge-focused Recruiting nowThis registry aims to connect people diagnosed with myotonic dystrophy (DM) or facioscapulohumeral muscular dystrophy (FSHD) with researchers. By joining, participants help scientists better understand these inherited muscle-weakening diseases and develop future treatments. The r…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated Jun 27, 2026 07:54 UTC
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Can ultrasound spot breathing trouble in FSHD before It's too late?
Knowledge-focused Recruiting nowThis study follows 34 adults with FSHD over one year to see how their breathing muscles change. Researchers will use ultrasound to measure diaphragm thickness and movement, along with standard breathing tests. The goal is to find out if ultrasound can detect respiratory problems …
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: NA • Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS • Aim: Knowledge-focused
Last updated Jun 26, 2026 14:40 UTC