FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Clinical trials for FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY explained in plain language.
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Gene editing hope for FSHD patients in early trial
Disease control Recruiting nowThis early-stage study tests a new treatment called EPI-321 for adults with facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes muscle weakness. The therapy uses a harmless virus to deliver an epigenetic editing tool that aims to silence the faulty gene…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE1, PHASE2 • Sponsor: Epicrispr Biotechnologies, Inc. • Aim: Disease control
Last updated May 17, 2026 07:59 UTC
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New drug trial hopes to slow muscle loss in FSHD
Disease control Recruiting nowThis study tests an experimental drug called AOC 1020 in 200 adults with facioscapulohumeral muscular dystrophy (FSHD), a genetic disease that causes progressive muscle weakness. Participants receive either the drug or a placebo by IV every few weeks. The goal is to see if the dr…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated May 11, 2026 20:46 UTC
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Join the fight: new registry connects muscle disease patients with scientists
Knowledge-focused Recruiting nowThis registry aims to connect people diagnosed with myotonic dystrophy or facioscapulohumeral muscular dystrophy, along with their family members, with researchers studying these inherited muscle-weakening diseases. By joining, participants help scientists better understand the c…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated May 17, 2026 08:12 UTC
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New FSHD registry aims to accelerate research through patient data
Knowledge-focused Recruiting nowThis study is building a registry for people with facioscapulohumeral muscular dystrophy (FSHD). Participants share their health experiences and data through surveys, which researchers use to better understand the disease and work toward improved treatments. Anyone in the U.S. wi…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated May 17, 2026 08:04 UTC
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Scientists seek Needle-Free muscle disease tests
Knowledge-focused Recruiting nowThis study aims to find less invasive ways to track muscular dystrophy, replacing painful muscle biopsies with simple blood and urine tests plus painless ultrasound and electrical muscle scans. Researchers will compare these new methods in 465 people with different types of muscu…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: Massachusetts General Hospital • Aim: Knowledge-focused
Last updated May 15, 2026 11:53 UTC