Join the fight: new registry connects muscle disease patients with scientists
NCT ID NCT00082108
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This registry aims to connect people diagnosed with myotonic dystrophy (DM) or facioscapulohumeral muscular dystrophy (FSHD) with researchers. By joining, participants help scientists better understand these inherited muscle-weakening diseases and develop future treatments. The registry is open to patients and their unaffected family members.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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University of Rochester Medical Center, Department of Neurology
RECRUITINGRochester, New York, 14642, United States
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Other studies related to the condition(s) this trial covers.
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