MYOTONIC DYSTROPHY TYPE 1
Clinical trials for MYOTONIC DYSTROPHY TYPE 1 explained in plain language.
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Music and movement: a new beat for DM1 kids?
Symptom relief Recruiting nowThis study explores whether weekly music and movement sessions are practical and enjoyable for children aged 6 to 18 with myotonic dystrophy type 1 (DM1). Over 10 weeks, participants attend 45-minute music classes, complete physical and cognitive tests, and use wearable devices. …
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Phase: NA • Sponsor: Hanns Lochmuller • Aim: Symptom relief
Last updated May 11, 2026 20:40 UTC
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Massive spanish DM1 registry aims to unlock disease secrets
Knowledge-focused Recruiting nowThis study is creating a large national registry in Spain for people with Myotonic Dystrophy Type 1 (DM1), a rare genetic muscle disease. Researchers will collect medical information, genetic data, and patient reports from up to 3,000 participants. The goal is to better understan…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Fundació Institut Germans Trias i Pujol • Aim: Knowledge-focused
Last updated May 17, 2026 05:02 UTC
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Join the fight: new registry connects muscle disease patients with scientists
Knowledge-focused Recruiting nowThis registry aims to connect people diagnosed with myotonic dystrophy or facioscapulohumeral muscular dystrophy, along with their family members, with researchers studying these inherited muscle-weakening diseases. By joining, participants help scientists better understand the c…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated May 17, 2026 05:01 UTC
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Brain scans reveal hidden effects of muscle disease on thinking
Knowledge-focused Recruiting nowThis study looks at how myotonic dystrophy type 2 (DM2) affects the brain and thinking skills. About 100 adults with DM2, DM1, and healthy volunteers will get brain MRIs, thinking tests, and blood draws. The goal is to find brain changes that can be used to measure disease progre…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Wake Forest University Health Sciences • Aim: Knowledge-focused
Last updated May 15, 2026 11:57 UTC
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Spinal fluid holds clues to rare muscle disease
Knowledge-focused Recruiting nowThis study looks at spinal fluid and brain activity in people with myotonic dystrophy type 1 to find early signs of the disease. Researchers will compare fluid samples from affected and unaffected volunteers. No treatment is given; the goal is to better understand the condition a…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Massachusetts General Hospital • Aim: Knowledge-focused
Last updated May 12, 2026 13:41 UTC